Black this….., black that……, poverty this …, health disparities that….., police brutality here and am adding to the list, black exploitation by pharmaceuticals. Why not test in Italy, France, New York, New Jersey or Connecticut? Racism? Bigotry? Greediness? Ignorance or Plain Stupidity #Black Lives Matter around the world.
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The death of George Floyd has unveiled many atrocities done to harm black people all over the world. We have seen all races united to give us a voice. During COVID-19, poverty, health disparities and comorbidities such as HTN and diabetes have claimed the lives of black people more than other races. Black people have been hit by a double edged sword, everywhere they turn, they are being exploited, killed or harmed and pharmaceuticals are guilty as well, they see black poor people, they see gold, they test medications, vaccines and perform medical trials, yet black people do not reap what these companies harvest: they do not enjoy the proceeds, yet remain poor, die from harm or plain simple, contribute without enough compensation
Amid all the riots and chaos in the world, I was watching the evening news where I saw some black South Africans sitting on a bench waiting for their turn to get the COVID-19 vaccine. My heart sank; I was so helpless, I sobbed. I called my daughter, who will be taking step one exam to complete her medical degree and become a physician to watch with me. This has been a hot topic in my household, and it should be time for change. My daughter has been involved in research and has evidenced the unfair treatment of blacks. I was outraged; I could not finish my dinner.
We witnessed the French doctors on television, not knowing that they were being taped discussing their plan to test the COVID-19 vaccine in Africans (Kossoff, 2020). Numerous relatives from South Africa and Zimbabwe have been calling us seeking advice about the vaccine trials, and we told them to absolutely not to take it. There goes another Tuskegee again. How long can black people suffer, not only racism, health disparities, but they are subject to many medical trials and vaccines that can harm them. No one knows the long term effects of the vaccine.
Two French doctors discussed on live television how a new COVID-19 vaccine under development should be first tested in Africa, "where there are no masks, no treatment, nor intensive care." (Kossoff, 2020)
One of them, Jean-Paul Mira, even compared Africans to prostitutes who were the focus of past AIDS studies. "We tried things on prostitutes because they are highly exposed and do not protect themselves," he said (Kossoff, 2020)
Growing up in Zimbabwe, Africa, I have witnessed many trials of medications and vaccines for HIV, oral contraceptives, to name a few. Many African countries are breeding grounds for big western pharmaceuticals, yet in the long run do not benefit from the proceeds. Many of the research participants do not consent and are not even aware of what is being given due to health illiteracy, which is a human right violation.
I have living relatives that have suffered the effects of such trials. I have an aunt who was given an oral contraceptive that turned out to be fatal. We only found out 10 years later when she was trying to have children. Another relative was given trials of polio vaccine which also resulted in harm. Women’s reproductive health is being violated, the old, poor and frail succumb to these big companies, even children are not exempt. African leaders are poor and greedy, they are so selfish that they sacrifice their people in exchange of cuff links, and a packet of sugar, what a disgrace!
Apartheid in South Africa and colonizers of African countries were characterized by systematic violation of human rights of the Black population (Barsdorf & Wassenaar, 2005). Succeeding ruling institutions perpetuated and enforced such violations (Barsdorf & Wassenaar, 2005). Consequently, Black South Africans may be apprehensive of scientific research in which the Black population are targeted as participants, regardless of the reason for them being selected. In America, Blacks are targeted as well due to poverty and low health literacy levels.
Increasingly, people worry that undue inducements for research participants in developing countries compromise the voluntariness necessary for informed consent (Emanuel, Currie, & Herman, 2005). In general, these research participants are poor, poorly educated, with access to few health-care services. They are often powerless, especially compared with pharmaceutical companies and researchers from developed countries.
What makes individuals, groups, or even entire countries vulnerable? And why is vulnerability a concern in bioethics? A simple answer to both questions is that vulnerable individuals and groups are subject to exploitation, and exploitation is morally wrong. Vulnerable individuals can be harmed. African governments have to protect their people by raising awareness of exploitation and efforts to enhance the ability to protect their citizens from exploitation at the hands of powerful sponsors of research and not be enticed by expensive gifts.
James Marion Sims performed gynecological exams on enslaved black women and their children because he thought black women were less intelligent than their white counterparts (Sartin, 2004). The Tuskegee's black men were infected with syphilis without their knowledge (Reverby, 2012). Some people might say, why are you bringing this up, it was done long ago. But my point is to show that there is trend since slavery in using poor black people for research, many people were harmed, in case of good results, not compensated accordingly.
There is a trend of exploitation, and it is still taking place in America and poor African countries in 2020. Now that we can discuss racism, bigotry, oppression lets involve pharmaceutical companies. As nurses, we cannot participate in such activities, and it is our duty to educate and inform people in vulnerable populations about informed consent and participation in human trials. I am glad I can write about this and enlighten everyone without fear of retribution or being told by white people that racism is not real and it is an imaginary situation in black man/woman’s head. It's real, people, I am black and beautiful and a proud African .
When pharmaceuticals see poor black people, they see gold, free guinea pigs for research!
#Black Lives Matter - around the world. Stop medical exploitation on blacks!
47 minutes ago, NurseBlaq said:At this point, I refuse to keep saying the same thing over and over again. There are studies and reports and testimonials on why black people distrust trials, new medicine, etc. Talking about it endlessly won't change that. You saying being distrustful will create a disadvantage healthwise shows you're not paying attention because we're already disadvantaged and that's one of the reasons WHY we're distrustful. The distrust didn't create the disadvantage, the disadvantage along with other nefarious practices created the distrust. If you don't understand that then I don't know how more simple to explain it.
You don’t really know what I pay attention to, or don’t. I feel like you’re ascribing me all sorts of thoughts, opinions and values that I never had, expressed or possessed.
You do not need to explain to me that distrust didn’t create the disadvantage. I know it didn’t. What I fear is that the distrust will perpetuate the disadvantage. There’s a big difference between the two, but the end result is the same. Continued disadvantage. I can’t fix that. You might be able to.
If something I write is unclear, please ask for clarification. English is my fourth language and while I’ve got a decent grasp of it, I might miss some of the nuances.
14 minutes ago, macawake said:You don’t really know what I pay attention to, or don’t. I feel like you’re ascribing me all sorts of thoughts, opinions and values that I never had, expressed or possessed.
You do not need to explain to me that distrust didn’t create the disadvantage. I know it didn’t. What I fear is that the distrust will perpetuate the disadvantage. There’s a big difference between the to, but the end result is the same. Continued disadvantage. I can’t fix the that. You might be able to.
If something I write is unclear, please ask for clarification. English is my fourth language and while I’ve got a decent grasp of it, I might miss some nuances.
If the disadvantage is already there do you really think we care about what it perpetuates knowing has happened in the past, currently, and more than likely in the future anyway?
I'm not even trying to be hateful but if, for example, you've hurt me in the past and keep hurting me so I distrust you. Do you think I care what it might perpetuate if I know you're going to hurt me again no matter what? You may not hurt me all the time but it still doesn't clear my mind or makes me feel more comfortable because I know it'll be done again. Every interaction I have with you will have the question in my mind of will mac hurt me THIS time? If you don't, I'll leave thinking OK mac had a good day but it may be done the next time so the distrust is engrained, especially if there's a long-standing pattern. Not being hurt THIS time doesn't mean I won't think you won't hurt me in the future especially knowing you've hurt me many times already. On top of that, if I have no other option to go anywhere else, I'm really going to be guarded and only come to see you when I have no choice due to fear of being hurt because that's usually what you do to me. If you say you have a test you think may work, do you think I'm going to volunteer to try it out knowing I already don't trust you? Nope. I'm going to wait until you try it out on other people, including the ones you like and don't hurt before I'm willing to give it a go.
The distrust will forever be an ongoing thing. We've learned from the past and are taking no chances.
1 hour ago, herring_RN said:I'm too confused by this thread to have an opinion.
Me too, herring_RN.
I feel both confused and a bit sad. It puts me in an ”abandon hope all ye who enter here” mood. I perceive that the tone is oscillating between anger and bleakness. To me, it’s people talking at each other, rather than actually communicating.
6 hours ago, macawake said:Me too, herring_RN.
I feel both confused and a bit sad. It puts me in an ”abandon hope all ye who enter here” mood. I perceive that the tone is oscillating between anger and bleakness. To me, it’s people talking at each other, rather than actually communicating.
Yes, I bowed out many comments back.
I’m really late to the party on this, as I come on this site like once every year. But the responses to this post have me so infuriated and frustrated I feel compelled to say something. There’s so much hair splitting going on it’s maddening. The invalidation on the lived experiences of black people is infuriating. The lack of reading comprehension (willful ignorance?) among my professional colleagues is disgraceful. For goodness sake the whole point isn’t about comparing the exact techniques or purposes of the trial to Tuskegee; it’s about exploitation of potentially vulnerable populations. It’s about informed consent. TRUE informed consent. And informed denial/refusal. It’s about compensation. It is to get us to THINK for a minute about power differentials and privilege in our societies, communities, even on a silly discussion board on the Internet.
For those that have felt felt invalidated and have had to repeatedly justify their feelings and experiences on this thread just because they have not been within the realm of experience for other - I am sitting with you in this moment.
This isn't happening just in Africa. Vaccine experiments are happening in the US and other countries as well. It's important to test something like this among many populations, and I don't understand why one primarily black population is an ethical issue. Assuming that there's the same or very similar processes of informed consent, there shouldn't be a problem.
NurseBlaq
1,756 Posts
My point still stands. That poster still did not say no white doctor should take care of black people in Africa. It simply wasn't said yet there is an inherent need to rant and argue in the ground a strawman theory that was created in someone's head. That's one of the main problems I have with people, you (not you per se) can't misunderstand or half understand or make your own assumption of what someone meant, yet clearly didn't say, then argue it into the ground as if that person yelled it at you at the top of their lungs. Also, refusing to listen and try to understand what that person is saying by using but this and that, or well so and so, or maybe such and such is completely dismissive of that person's feelings, especially when they're speaking on valid experiences of racism. You can't say you know it exists then in the next sentence dismiss it and argue it down with whataboutism. Stop and actually listen to what that person is relaying to you.
You've done what the other person just did, trials all over the world do not equate to black people not trusting drug trials, it simply doesn't.
At this point, I refuse to keep saying the same thing over and over again. There are studies and reports and testimonials on why black people distrust trials, new medicine, etc. Talking about it endlessly won't change that. You saying being distrustful will create a disadvantage healthwise shows you're not paying attention because we're already disadvantaged and that's one of the reasons WHY we're distrustful. The distrust didn't create the disadvantage, the disadvantage along with other nefarious practices created the distrust. If you don't understand that then I don't know how more simple to explain it.