Bizarre family member behavior

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I had this patient in an ICU setting a couple days ago. Patient background -- approx. 70 YO M had an open nephrectomy about 3 weeks ago. He went out to the ward POD 1 and came back to the unit on POD 3 after vomiting and a severe aspiration event requiring intubation. He was very ill initially (hard to oxygenate, in ARDS) and this persisted for about 3 days or so after the aspiration. Since that time, he has remained ventilator dependent although in stable condition. Very lethargic/deconditioned, being tube fed, etc.

I took care of this patient the second and third day after he came back to the ICU after aspirating. The only family that decided to show up at the hospital after all these complications was his sister and his niece on the 3rd day. Patient has a wife and 4 children. Sister/niece were understandably very worried. I explained to them the severity of the situation and that he had made some improvements over the last 24 hours (true by the third day.) Sister/niece were concerned that none of his immediate family had shown up and wondered if they needed to call them in right away. I told them that this wasn't necessary and that he was in stable (although serious) condition, and then they asked me for my opinion on what I would be doing if this was my family member. I hesitated to answer, but I told them the truth, and that was that I would be at the hospital every single day if that was my dad. I think they took that to heart and talked to the rest of their family (patient's wife/children), although I can't verify this.

Fast forward two weeks. I haven't cared for the patient since. I get him a couple of days ago and the son I never heard a word from during that initial period calls wanting lab values. Apparently he had been doing this on a daily basis, and it had been ok'ed, so I gave him all the info he wanted (from other staff that have done this, son is NOT medical. No idea how he is interpreting this information.) He then told me he had been in over the past weekend for a 1/2 hour and took issue because apparently the patient's leg had slipped out of the side of the bed and he was too weak to put it back in himself...worried that his dad was in pain with that, etc. He asked me if I could get a bed that had rails that go all the way down to the end of the bed so this wouldn't happen again. I told him that no bed that I know of like that was available and generally we keep our patients on our ICU beds unless contraindicated because of the mattress having some protective affects for their skin, etc. and I would make sure that he had all the rails up and was adequately watched so he wouldn't slip out of bed. Also went on to detail that patient was in an ICU and had 2:1 staffing, we looked at him frequently, etc. so he didn't need to worry that the patient wasn't being taken care of. Also explained that the patient was very lethargic and didn't move much on his own (and indeed, for my entire 12 hour shift, patient did not have his legs out of the bed. They stayed exactly where I repositioned them.) He was very adamant that we get him a new bed or completely pad the patient in the bed with pillows so the leg that he observed being out of the bed for a very short period of time 2 days prior, when I wasn't even taking care of the patient, wouldn't fall out again. He was like, "Well, I saw it, and it did happen, so can you just do that so it doesn't happen again?" ....like trying to place blame for something. And, something very minor in my estimation. I really didn't know how to respond after I gave my lengthy explanations as to how I would ensure that the patient was adequately cared for. I was pretty bewildered at his behavior and just let him talk at me some more and then let him say goodbye.

What IS this? Is this guilt, at not having been there before, or not being there often enough? Is he a control freak? How do you explain this weirdness? And a better question -- how do you deal with it?

I am writing an article for AMN Healthcare about how nurses can help families become assets instead of liabilities in patients regaining their health.

Deadline is end of day, this Wednesday. I really need tips you might have used or you share with new nurses on making families' bedside behavior "healthy" for the person in the bed. I can do a phone interview which would only take 10 minutes tops! Or you can share your tips here...downside is I need your name, credentials (RN, etc) and the hospital or organization you work for and I am not sure how to get that without sharing "Identifying information."

Any chance any of you would be able to help me? Any ideas on how to get your info to me?

Specializes in Corrections, Cardiac, Hospice.

For those of you who feel so bad for patients that don't have someone near when they are in the hospital, please keep in mind that the patient may be responsible for that behavior. Without going into detail, my biological father hasn't been a part of my life since I was 3. If they called me (doubtful) and said he was in the hospital in poor condition, I would feel bad, but not shattered. Detached would be the emotion I would describe. Now, my step-father, I would walk through the fires of hell for in a New York minute. So, please, before you pass judgement on family that doesn't come, keep in mind it may be the patient's fault nobody cares.

Specializes in ER.

I had a strange situation about a month ago, and I'm wondering what other nurses would have said.:confused:

Lady is brought into our ER, full cardiac arrest, CPR in progress, been down maybe 20 minutes.

I take over the CPR, and everyone gets to work.

Patient's son wanders in, (age maybe 35?) and comes up to me,

"Nurse, I'm just wondering how long this is going to take? I'd like to go to the grocery store across the street while I'm here, I don't get to this part of town very often . . . "

Huh??????? :eek:

Specializes in ICU.
I had a strange situation about a month ago, and I'm wondering what other nurses would have said.:confused:

Lady is brought into our ER, full cardiac arrest, CPR in progress, been down maybe 20 minutes.

I take over the CPR, and everyone gets to work.

Patient's son wanders in, (age maybe 35?) and comes up to me,

"Nurse, I'm just wondering how long this is going to take? I'd like to go to the grocery store across the street while I'm here, I don't get to this part of town very often . . . "

Huh??????? :eek:

How many times has this man seen his mother coded before??? Is this a regular thing? Unbelievable that someone could react that way!!! Maybe he was high?

Specializes in CDI Supervisor; Formerly NICU.

The internet makes every family member a specialist.

Hi Mike, any chance I can use this in my article? Your approach seems custom made for critical care situations - concise, gets the point across but doesn't end up in a shouting match. All I need is the name of the hospital where you practice.

I wish, as there is this huge push for a patient's bill of rights, that we had a healthcare provider's bill of rights also.

Or, that perhaps, on admission, that families were handed a Guide to Good Behavior while caring for a loved one in the hospital.

I find caring for the families MORE difficult than caring for patients, hands down. I feel sorry for doctors in this regard.

They seem conditioned to want constant, CONSTANT updates. I have learned to update them w/ every little thing I know ..that seems to placate them, for a while. And I offer as much info as possible -- even if it's trivial.

But they really need to be taught about hospital routines, about what to expect, what what they cannot expect -- and made to understand that if want/need a certain level of service that they perhaps should pitch in for a private nurse.

I just don't think it's fair to many patients when one out of your group demands all your attention for little requests when another patient truly needs a nurse w/ his/her full attention on their medical condition.

Specializes in ICU.
Hi Mike, any chance I can use this in my article? Your approach seems custom made for critical care situations - concise, gets the point across but doesn't end up in a shouting match. All I need is the name of the hospital where you practice.

If Mike told you WHERE he worked, that could end up being a HIPAA violation. Several RN's (I believe from San Diego) were fired after they posted patient situations in their private blogs.

Specializes in Peds, PACU, ICU, ER, OB, MED-Surg,.

We as patients or families lose all control when someone we love is in the hospital. This is the only thing that he can control. Let him. Pad the rails and explain why to on-coming shift.

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