I am extremely upset right now! I am 12 weeks away from graduating from my PN program and have just completed 3 months of Peds clinical rounds. A very good friend of mine has a 5 year old child with CP. He was a 24.5 week preemie, is (of course) wheelchair bound, requires a trach, is completely deaf (without his cochlear implant), and is nearly blind. He has severe developmental delay and is non verbal.
Recently, this child has begun playing the game of "Pull out the trach", because he knows it will ALWAYS get somebody to come running. He thinks it's HILARIOUS, at first. A couple of days ago his mother had a very difficult time getting his trach back in and she and Patton were both traumatized by the experience, as you can well imagine. This, of course, did not correct his behavior. She posted something about it on facebook, and I suggested that she ask her doctor about elbow restraints. Note the fact that I said "ask your doctor" and not "go out and buy them". The thing that has me so ticked off is that another friend of hers, with zero experience with special needs children, and zero medical training thinks that the internet has all of the answers and is telling my friend that the internet says that elbow restraints are a no no. My response to that was that pulling a trach out is a BIGGER no no and that if used, intermittently (under a doctors supervision), it could prove to make life much safer for Patton and much saner for his parents. Not a cure all forever.. but, just until he gets past this phase that he's going through, and just for part of the day.
Is there anybody here with an actual license who disagrees with me? If I am wrong I would really like to know, and understand the rationale behind it. Thanks so much, and sorry for being so long winded. I love this child and, simply, want to help him and his family. :heartbeat