Disabled & Hating it - page 2

by cJoeyRN

1,791 Views | 13 Comments

(Sorry this is so long-but-it's complicated) It really is true-You don't know what you have, until it's gone. I was an RN (OR) for over 20yrs. Have been disabled for 14yrs. due to multiple degenerative diseases-(of course) the... Read More

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    Dear Joey. I do understand. I am not disabled, but was married to a hard working man. He worked 6 days a week 10 hours a day for at least 20 years. Slowly his body deteriorated. What many people don't understand is what it took or should I say took away to get SSDI. If your there then you probably went through your saving, your retirement, a second mortgage and maybe your children's college fund. If that isn't enough you lost your job because of too many doctors appointments, therapy, sick days, etc. It takes a lot of loses besides the lose of your health to collect SSDI. So make no judgment on disabled persons unless you want to trade places with them for a small monthly check. To stay healthy you must be productive, you must find your purpose. Sometimes it is not what we expect, so look at the unexpected. Unfortunately my marriage did not survive but I am a better person for what I have experienced and can be a better more compassionate nurse to those I serve. Many who are disabled.
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    Quote from cJoeyRN
    (Sorry this is so long-but-it's complicated)
    It really is true-You don't know what you have, until it's gone. I was an RN (OR) for over 20yrs. Have been disabled for 14yrs. due to multiple degenerative diseases-(of course) the major one-spinal diseases. I hurt my neck the first time, when I was still in Nursing School-an excellent diploma school. I WANT to work. The first few years of my disability-I scoured the ads for something I could do. I simply couldn't figure out what I would do the rest of my life! Sit around & wait to die?!
    Fortunately the first 5-6 years, I had two very special people in my life, who were in need of a little help. I was still capable of giving them the company they needed, run errands for them-I felt useful. They've both been gone for several years-leaving me to struggle alone. Wasn't good at making friends-my family were my friends. But, they're busy with their families now. As my conditions deteriorate I need help (SSDI doesn't go far enough-especially when you "make too much money."), because I fall through the cracks. I simply don't know what to do, or where to turn anymore. You NEVER think this will happen to you. I didn't plan for anything like this-or, for that matter, for the long term-very well at all.
    I've been trying to do online surveys to make enough money for all my bills-but they don't pay the way they did back in 1999, when I got my first computer. My Psychiatric NP said she found some sites that pay $25 and up, for their surveys. But, I've yet to find anything like that. I really don't know what else to do. I feel so very lost...and alone.
    Thanks for giving me a place to tell my story. If this helps even ONE person to: stop, think, and prepare from the very first days you begin your career-for the worst possible scenario-I will feel I have STILL been of some use.

    I feel your pain. I am permanently disabled due to complications from cancer treatment. Prior to getting sick, I worked in outpatient oncology. I really miss the patients, I miss my co-workers. I miss living independently, I miss driving.

    I make some extra $$ as a blogger/moderator for an oncology website, but it's hard to go day after day feeling like you don't have a purpose in life.

    ​You're right...you never think it will happen to you.
    VivaLasViejas and SoldierNurse22 like this.
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    I wish I could get designated "disabled". My spouse has medical issues that require me to work and provide Rx coverage and health ins. By the time I can get her on SSDI she will qualify for medicare or be dead. Unfortunately I'm killing myself just going into work each day. If I could take the time off to get on SSDI and could still meet my spouses needs I would do it today. I'm sure I'd miss some of the satisfaction of providing for patients needs, but I'm going to end up in a wheelchair myself before I get to retire. I hope you find a path that is right for you. The important thing is to find a way of enjoying what you can while you can. That just may not be working as a nurse anymore.
    FranEMTnurse likes this.
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    I am not technically disabled, but I do have a disability. I have a mental health condition that makes it very difficult at times to work and be productive, and I've suffered some pretty serious losses as a consequence. But I'm not in a position where I can afford to go on SSDI, even if I needed to---my husband has cancer and we both need the health insurance my job provides, in addition to my salary. There are no other options, no Plan B. Just work as long as I can and hope I can hold it together long enough to retire.
    Nola009 likes this.