Born with Leukemia

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    had a little one, less than a week old and diagnosed with leukemia - anyone ever see this?

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  2. 12 Comments...

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    Not leukemia specificlly, but I've seen a few neonates or very young infants with malignancies such as neuroblastoma, cardiac myxoma, Willms tumor and histiocytosis. Depending on the type of malignancy the prognosis varies; the younger a child is at diagnosis with neuroblastome, for example, the higher the odds of a good outcome, while with histiocytosis it's the exact opposite. It's definitely an unfortunate way to start out life though.
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    In my short-ish experience, I've seen one case of neonatal leukemia and several cases of myeloproliferative disorder in newborns with Trisomy 21. (Not exactly leukemia, but related.)
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    i have seen neonatal leukemia. the infant died within hours.
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    Poor baby. I haven't seen congenital leukemia, but I have seen several babies born with large tumors (two of them were the tumors always on the neck and lower face.) Both babies had the tumors removed from their throat/neck areas and went on to have months of chemo, in our unit.
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    dawnbethe, are you talking about cystic hygroma? I've seen a few of those too. One little girl had a huge one on the left side of her face and neck that wasn't completely resectable and it kept coming back. She was trach-dependent because of it. But she never let it stop her!
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    dawnbethe, are you talking about cystic hygroma? I've seen a few of those too. One little girl had a huge one on the left side of her face and neck that wasn't completely resectable and it kept coming back. She was trach-dependent because of it. But she never let it stop her!

    Jan--that's probably the one. I can NEVER remember the medical terms for things. lol. One of those former babies is now a teenager. She has a really deformed jaw and mouth, but we see her almost every year either at the annual reunion picnic or when she visits after being in cranial-facial clinic.
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    Thanks for the info. it is a sad beginning to life.
  10. 0
    Quote from acenab4jc
    had a little one, less than a week old and diagnosed with leukemia - anyone ever see this?
    Yes, unfortunately we have had a few infants who have been diagnosed with leukemia at birth. Usually it is AML. They are extremely ill and unstable, anwe we place them on strict isolation. If they stabilize to the point that chemotherapy can be started, we have certified Oncology nurses come to the NICU to administer it. It is heart breaking, because sometimes these infants survive for a few weeks, but overall, we have found their prognosis to be very poor.
  11. 0
    I've seen a few cases of neuroblastoma and some other tumors in our unit. I have not seen neo leukemia but we've seen some other blood disorders that are quite rare.


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