In Bed with Dying Patient

Sometimes, a family member's behavior is so clouded by the grief and shock of a loss that we must be courageous enough to practice outside the box. Nurses Announcements Archive Article

My patient had been ejected from his car after hitting black ice. His prognosis for any recovery was a hairs-breath above zero. We knew he would never again walk this earth.

The family was large and streamed in and out of the room. All were polite and respectful. The wife dutifully provided explanations and "stability" for the large family and the throng of visitors.

From the periphery, I observed her. She kept her emotions in check, only occasionally tearing up. It almost seemed she were "hostessing" the "event". But her slow-motion movements belied a simmering grief that needed to be processed.

Having worked in ICU for ten years, I knew there was nothing humanly possible to change his course. I knew soon his heart--the heart that beat for so many years in unison with the woman--would stop, and the body that warmed her would grow cold, and the soul that united them and breathed life into her, would slip away.

The family and friends were "there" for the wife but they seemed unaware of the need I saw simmering just beneath her expression. And as the people kept calling I could sense a growing need within her. She began seeking my approval about letting anyone else in. I told her these would be the last. There was something we needed to do. The final visitors let the others who had gathered in the waiting room know that visitations would now cease.

I led the woman into the room. I rearranged the mechanical lines of life support and gently pulled the husband over to one side of the bed. I let down the rail.

"You need to lie beside him," I said.

She looked at me with utter astonishment. It was as if I had just told her I could bring transport her back to the day before when her husband was home and alive and this place never existed. Her tears streamed down her cheeks. She cried and cried as I helped her in beside him.

I assured her she would not be disturbed by anyone, for any reason. She could emerge from the room when she was ready and could stay as long as she needed. I would guard against any disturbance.

I covered her with a blanket and put chairs against the bed as a reminder to her that the railings were down. I handed her the call bell and closed the door and curtains behind me.

Some weeks later I received a letter from her. She had difficulty describing the torrent of emotions that enveloped her while she lay with her husband that final afternoon of his life. But she said that being able to fully embrace him provided her comfort and peace that would warm her for the rest of her life.

It's so simple, yet too often we lose focus on what really matters.

Have the courage to let your humanity lead the way.

Specializes in Rehab, LTC, Peds, Hospice.

I'll never forget how kind the ER staff were to us when I lost my 7 month old to SIDS. They waited until I arrived from work - a 45 minute drive at best, to call the code. Then they led us to a private room and brought my son for us to hold and say good bye to. I held him for hours and when I had an overwhelming desire to see all of him, they said not a word as I undressed him. Just that last look at his sweet baby feet was so comforting to me in a way I can never describe.

This is such an amazing and moving article.. thanks for sharing

Specializes in Mixed Level-1 ICU.

Dear Dixielee,

You are entering of period of darkness that none of us could ever imagine unless we experienced it ourselves. But remember that you are providing your husband the greatest honor in having loved him the way you have. Your being his wife allowed him to become everything he is, and in turn, he has returned your love in kind. And as you honor him now by being there and holding him when you can, the love you so freely offer will illuminate your path forever forward, no matter what comes next.

Do not worry about second guessing how you feel. There is no playbook of grief. It is an individual as the stars and you owe no one apologies or excuses for your behavior.

We’re here for you should you need this great community of collective hearts.

Specializes in pedi, pedi psych,dd, school ,home health.

((((Dixilee))))) sending heartfelt thoughts your way; and god bless you as you assist your husband on his journey. Please do not try and do everything alone, though... you dont need hoards of people in your house but you do need to eat sleep and rest yourself. Please take care of yourself ; and come to any of us if you need. :heartbeatyou are an inspiration.

Specializes in ED, Critical Care, Peds & Nursery.

i pray that i am able to do this, and with all the mental energy and physical strengh i have, i will do my best.

dixilee, do pray. pray hard and often for strength and energy. let the lord help you. and let others help you; surround yourself with good people. be near him and be selfish if you have to. if you have children let them say goodbye too and be near him as well. i feel for you and i am so sorry you are going through this. i pray that you find comfort and peace in his last days and that his suffering is not long.

take care of yourself.

~kelrn24

Specializes in Med/Surg.

This story touched me. I almost started crying after i read it. You really captured the spirit of nursing in this article!!!!! good job!!!!!!!!!:up::up::up::up:

Specializes in Cardiac & ICU.

Wow. Thank you so much for sharing. I've only worked in the ICU for a little over a year, but I've already had several patients and families that I've cared for at the end of life. I've seriously considered a career in hospice due to the cards and letters I've received after the patient passed. Again, thank you so much for your story - it's an inspiration.

:redpinkhe

I worked with nurses aide who did this with an elderly couple and he saw me at church and praised all that was involved with it. I make sure my nursing students touch their patients and know their feelings. I believe that healing is in the hands not just through medicine.

I'm so ashamed of the nurses that now sit on their butts and don't get to know their patients. It is truly their loss.:heartbeat

What a beautiful story. I'm still a student, but this is the kind of nurse I want to be. I'm going to print this out and keep it with me as a reminder to never get so hardened by what I see that I loose my compassion for others. You are a true inspiration to all of us who are just starting out. Thank you for sharing!

What a beautiful story! What compassion! I commend you for the humanity you so obviously show to your patients and families!

Thank you so much for posting this story. I just graduated, passed my boards (!!!!) but because of other training I won't be able to start floor nursing until June. But this story reminded me of the nurse that I strive to be; the one who looks deeper than his/her patients' physical needs. I hope that I have the ability to express the compassion that you have and truly practice holistic care. I appreciate you and what you do and for inspiring someone like me :) Thanks again. :bow:

Specializes in Mixed Level-1 ICU.

dear jmern,

i am humbled by all those who say that i have been an inspiration. for me--once and always a teacher--there is no higher honor than to know that i have helped others garner the courage to step beyond the circle of understanding or expectation and into the realm of what is possible.

we each possess our own special genius. it is up to each of us to find the right door which, when opened, leads to a future not yet imagined.