Sometimes kids w/BPD also have tracheal malacia. This can be treated w/Laser when they're a bit older, and often that cures the problem. Watch fluids, fatigue, hopefully there's a sat monitor. She'll be on lots of meds as a rule, may have a g-button. MAXIMIZE nutrition, the only hope of outgrowing BPD. If you haven't had a flu shot, get it, flu would kill her. Make sure everyone around her stays healthy and doesn't smoke. [I know, seems obvious, but...] If she can't take the entire days feeding, use the g-tube to give it to her slowly over night. Very easy to get overloaded. Also, their electrolytes are often out of whack, the really dangerous one is having a low chloride. If she's at home, hopefully, they've got all that stuff in order, but those are the things I worry about. Try to normalize her environment--gently. play soft music--lullabies--@ nap- and bedtime, read to her, identify her special toys. Stuffed toys that can be washed are good. Expect her to be soemwhat developmentally delayed.
Mom is the expert--try to treat her as a valued colleague. Mom has been thru hell w/ the NICU, and a baby w/such a protracted illness, kinda PTSD victim, and they're not out of the woods yet.