Fibromyalgia - page 27
What are your opinions, nurses? Is Fibromyalgia a justified condition or just a basket term ? I am interested in your feedback. It seems like we see a large number of patients (usually women) with... Read More
Jan 18, '08Quote from Miss_ChybilListen, we are not saying that these people aren't feeling pain. All i'm saying is that they need to focus the research, not on pain management, but the source of the pain. aka. mental disorders. Just because you read one article doesn't make you an expert. I could pull out dozens of articles showing fibromyalgia is a farce made up by doctors so that they can treat the symptoms of depression rather then depression itself.Patients with fibromyalgia have elevated Substance P in the spinal fluid and decreased levels of serotonin which causes an increased sensitivity to pain - along with a severe sleep-disorder. The FDA has just approved non-narcotic Lyrica - a drug used to treat diabetic neuropathy, shingles and other nerve pain - for the treatment of fibromyalgia. Other drugs are also being researched.
I'm increasingly offended by people who have neither fibromyalgia, nor medical degrees, trying to decide if the disease is "real," or not. People, do some research before you write off over 3% of the American population as simply attention, or drug, seekers.
If you're more interested in science than your own opinions you might find the above artice interesting.
Jan 18, '08My thoughts on fibromyalgia, fwiw, I think there are folks out there with a real disorder. However, I also think there are those people out there who say they have the symptoms or even lie about a history of fibro in order to get the meds that a lot of fibro patients are prescribed...narcs, sleepers, muscle relaxers and such.
I worked with a nurse who was diagnosed with fibro. If she didn't have fibro, she definitely had something else wrong with her. The change in her was dramatic. She eventually moved to a warmer climate because of how much worse she felt in the cold weather.
About fibro patients being the biggest whiners, I wonder if the really whiney, demanding patients are the ones who really have fibro or if they are the ones who just say they have fibro to get the drugs. We all know how demanding the drug seekers can be and I think it is mostly the true drug seekers who have created the negative stereotype many health care providers seem to have for a patient with the fibro diagnosis.
I do feel sorry for those patients who truly have fibro...not only are they dealing with the physical and emotional distress caused by fibro but they are also dealing with a negative stereotype brought on by our experiences with other patients who probably do not even have fibro.
Jan 18, '08Quote from nursemoons14If I was only "offended" before, I must say I am flabbergasted by your post. I have done more than read one article on fibromyalgia. The articles I've posted ARE about the RESEARCH and the findings after such research.Listen, we are not saying that these people aren't feeling pain. All i'm saying is that they need to focus the research, not on pain management, but the source of the pain. aka. mental disorders. Just because you read one article doesn't make you an expert. I could pull out dozens of articles showing fibromyalgia is a farce made up by doctors so that they can treat the symptoms of depression rather then depression itself.
I have fibromyalgia. I have suffered with it for over 7 years. The pain gets so intense some days I can't get out of bed. That was before I began taking Lyrica. I have never been on disability and in the last 7 years I have earned one bachelor's degree - I'm working on the second. I've worked and maintained my home and family. I did all of this, even though the mere act of my son poking me on the shoulder to get my attention caused me excruciating pain. I might add, I delivered this son eighteen years ago and three others before him without any pain intervention, whatsoever. I used to have a very high tolerance for pain and I can "handle" it. Shoot, I used to get my teeth filled sans Novocaine! Maybe, that's why I could get through the last seven years with only Lunesta to help me deal with the pain from my fibromyalgia. I don't know. I know many people who have been completely debilitated by it and by the drugs their doctors have given them to treat it.
You present a chicken and egg argument - are fibromyalgia sufferers feeling pain because they are depressed, or are they depressed because they are in pain? I would think nurses would find this question irrelevant. Pain is pain. Depression is depression. Anxiety is anxiety. None of these should be dismissable by anyone - especially nurses. These are all very dangerous symptoms and diseases. Instead, some nurses choose to judge which pain is esteemable and which pain need not be addressed, even which pain is real - or they choose to make their own diagnosis based on cousins who live far away, or people riding carts in the supermarket.
It took me a few years, after first noticing the physical symptoms of my fibromyalgia, to admit I was depressed. I didn't realize I had anxiety until I didn't have it anymore - after I started taking Lyrica. Since then my depression has lifted, I can do many things in a day,(I even practice yoga almost every day), and I really don't think dying is a viable alternative to living, anymore. This is probably due to the fact I am no longer in pain, (I still have a little), but it is more likely due to the fact Lyrica has raised my serotonin levels and lowered the levels of Substance P in my nervous system. Increasing serotonin levels IS treating depression, by the way. (Please, post links to your studies disputing the Substance P and serotonin connection to fibromyalgia. Hopefully, they will be published in reputable journals, and/or by the government. I will be glad to read them. I'm always searching for information. Unlike others, who remain willfully ignorant.)
In the end, it is neither my story, nor the lady with the cousins whom she thinks don't deserve disability checks because they seem chipper on the phone, that really matter. It's the science that matters. Thank goodness for the people who keep searching for answers, as opposed to the ones who think they already know them. If not for the searchers, I would still be in pain, depressed and anxious. I posted these studies and talk about the treatment that has helped me because there are many who are subscribed to this thread who are still suffering from this disease and from the bigotry shown them by simply admitting they have it. This information may help them. It may not, but it should offer all of us hope simply knowing there is a chemical component to this disorder which may be remedied. For those who do not suffer, it should prompt you to keep an open mind and allow you to better care for your patients.Last edit by Miss Chybil RN on Jan 18, '08
Jan 18, '08Update for Miss Chybil: Don't ever forget that YOU don't know what struggles, physical and/or mental that OTHER posters to this thread have or are going through. I actually am interested in the level of functioning of these two cousins, but not so I can turn 'em in to social security if I don't think they deserve it, which I don't! For me it's a question of who and how people bilk the system, and more inportantly, who pays? Just 30 minutes ago I had the opportunity to speak with a trusted family member who had JUST visited with one of these cousins. This family member DOES believe that fibromyalgia is real, but saw first hand the level of functioning, and observed no disability (yeah I know, you can't always tell)! Apparently, the other cousin I mentioned has succeeded in alienating just about every other family member, which explains why after 50 (yes FIVE-O) years she is all of a sudden making contact. I do not encourage this and refuse to get embroiled in her cause, whatever it is. Never forget that there is a lot of money to be made by dX and treatment once something becomes a disease. I am happy for you that you are doing better; I'm not COMPLETELY without feeling. And as far as thinking what I will, no research I have read this far can compete with what I have observed in the field. Maybe you can change my mind, but right now? Not so much.
Jan 19, '08"It took me a few years, after first noticing the physical symptoms of my fibromyalgia, to admit I was depressed. I didn't realize I had anxiety until I didn't have it anymore - after I started taking Lyrica"
This may be the case, but were you ever placed on anti anxiety meds? I'm not saying that people with "fibro" aren't feeling pain, im just saying its over diagnosed and the underlying cause isn't treated. Thats like saying, ok lets drug up a pt with chest pain and since they aren't having pain anymore everything should be ok... right? I can tell you first hand, covering up symptoms isn't going to make you better off in the end. You need to read my post a little more carefully
Jan 21, '08I have the utmost sympathy and respect for all my patients in true pain. I live with aches and pains myself and have suffered in the past few years with a back injury. But, as far as "fibromyalgia" goes, I have never seen a "Fibro" patient who wasn't "as crazy as a run over dog." Pain is one thing, but the drama that goes along with "Fibromyalgia" is just ridiculous. But this is just my "observation."
Jan 21, '08Just a nursing student here...Isn't it true that a lot of health plans have a limit/won't cover 'mental illness' but do cover physical illness, thus a stress on the physical aspect of fibro.If someone is in pain, treat it whatever the cause.Another point is the stigma attached to having mental problems so a diagnosis of fibro may get more respect as a physical condition. Why couldn't fibro pain be a physical manifestation of anxiety/depression and still be a legit illness and something not to be ashamed of?Personally I think mental illness is indeed a physical problem as well and should be treated with the same respect (i.e. not someone's fault).Fibro may attract some fakers because of the well-publicized pressure points and lack of physical damage that other rheumo diseases have but that doesn't mean that the majority of people with fibro are indeed suffering....hey some people find an angle no matter what and I'm sure fibro is just one of many for those type of people. Reminds me of 2 people at work who both had surgery for carpal tunnel syndrome - one guy took all his sick leave and even scheduled the surgery around his vacation so he could have more time off (vacation + sick leave), the other person was back at work the next day!
Jan 21, '08Quote from nC09n34t0I have the utmost sympathy and respect for all my patients in true pain. I live with aches and pains myself and have suffered in the past few years with a back injury. But, as far as "fibromyalgia" goes, I have never seen a "Fibro" patient who wasn't "as crazy as a run over dog." Pain is one thing, but the drama that goes along with "Fibromyalgia" is just ridiculous. But this is just my "observation."
WHAT??????? "crazy as a run over dog???? "Drama"??????? I feel sorry for you to feel this way about people.
Jan 21, '08Quote from mammaoftwoAnyone who doesn't see fibromyalgia pt's on a regular basis. ex. emerg or acute care. HAs no idea the drama that goes a long with "a majority" of these pt's. Others are quick to judge the way we act or talk about patients. But if you work where we work for even a few months, you will most certainly lose a good chunk of "sympathy" you have for people. I am a very compassionate person but after seeing frequent flyers and people abusing the system as much as we do, you start to really question peoples pain. Most of us can tell who's really in pain and who's milking it for all they have. Like when you walk by some of these people and they are sleeping, you wake them up by applying the sternal rub because they are in such deep sleep only to tell you they are in 10/10 pain. It is very frustrating when you have these demanding pt's and still have to provide care to those who emergently need it. So in my experience they catch the back seat and when they awake from sleep asking for pain meds, im not exactly going to put that on my priority list.WHAT??????? "crazy as a run over dog???? "Drama"??????? I feel sorry for you to feel this way about people.
Jan 21, '08I have rheumatoid arthritis, one of my doc's put me on Lyrica. I had MORE side effects from Lyrica than from narcotics. He started me out on 75 once a day then twice a day after about a week. I was higher than a dang kite, fall asleep at the drop of a hat. Fall asleep in the middle of conversations. I called him and he said I just had to get used to it.... nah, I quit taking it. Plus it made me swell up like a bullfrog!
Jan 30, '08Quote from LilgirlRNI've seen numerous patients and have read personal accounts on Fibromyalgia Forums by other people that also have a terrible problem with swelling r/t Lyrica.I have rheumatoid arthritis, one of my doc's put me on Lyrica. I had MORE side effects from Lyrica than from narcotics. He started me out on 75 once a day then twice a day after about a week. I was higher than a dang kite, fall asleep at the drop of a hat. Fall asleep in the middle of conversations. I called him and he said I just had to get used to it.... nah, I quit taking it. Plus it made me swell up like a bullfrog!
Lyrica is Scheduled medication...probably why you felt a high from it. Apparently, it does have a risk for abuse.
One drug that seems to be helping a lot of Fibro pain patients is Neurontin. Just like diabetics with Neuropathic pain (which is also subjective-well, like all pain is), this drug seems to help 'dull' the pain sensation. I've never met anyone that has had 100% pain relief, but I have talked to a lot of people that have stated that the intensity of the pain has been reduced drastically and have had minimal, if any, side effects.
Also, I seem to be seeing a pretty consistent pattern with the medications prescribed for those with Fibromyalgia. I have to admit, I personally think some meds that are being prescribed over and over are completely useless for this disease and other meds are definitely better.
But since the medical community seems to be split on weather this is a 'real' or 'imagined' disease, inconsistent care and management of this will unfortunately continue for awhile.
Jan 31, '08Fair (pale), Fat, Forty-ish, Female.......... "Fibro"
Not saying ALL Fibro patients fit this demographic, but does anyone else notice the trend?
I had a patient once that was "end stage Fibromyalgia".