The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in ICU, Telemetry.

I promised myself after that pt's death was that I'd find some way to a) deal with the anguish and guilt I felt, and b) try to keep it from happening to someone else. Since over 7300 people *OMG* have read this, maybe I've done a little something toward that.

Again, thanks so much everyone for reading.

Specializes in geriatric & childrens psych, rehab, woun.

sweet heart you did not fail her. her children did her doctor did but you served her in dignity. And as much as it breaks your heart that we are not listening to her requests that are written down in a legal form, they can be overridden by a well meaning family member. It is unfortunate That this happens all the time.

my mother has sat down with all 7 of us, the only dissident to her wishes is my one sister who believes that mom should be hooked up to everything, only my brother and I are listed as power of attorney, he lives with her and I am to advise him with my knowledge, this was agreed upon by everyone but my one sister who is angry because, we fail to see her religious views, about the sanctity of life. we told her if she dared to fight us on mom's wishes We'd make her life a living hell.

Unfortunately I know first hand how hard it can be to rescind these orders once they are initiated. my oldest daughter had sids her monitor failed. I was in a hospital in another state trying to get the pregnancy I was carrying to term and she was with her dad and his mom. the baby was put on the respirator and other equipment, but was brain dead, and in organ failure, when we went to turn off the equipment the right to lifers came in with my mother in law to fight us. She stated We do not do this in our family. I reminded her both her son and i had thought about this and it was a extremely hard decision to come to but Holly would never come out of this. Holly died 4 days later while we fought in court.

I thank God the local media chose to leave it a private matter and we were not made a public specitical. i think part of that was the fact i was 6 months pregnant and eclamptic. and the Judge told the right to life attorney. that his group was looking to save one child who would have no quality of life and kill another because of the undue stress they were putting already grieving parent through. our relationship with his mother never healed and was always very strained.

I think I'm having dnr tattooed on my chest like one of my residents did so there is no question as to what he wants he wants no infighting from the ambulance crew about weather it is a state form or just a legal form.

So beautifully written. I see this all too often. It just breaks my heart. :crying2:

Specializes in Med Surg, Nursing Administration for SNF.

Beautiful and poignant. I am giving this to give to our Staff Development nurse when she reviews Advanced Directives training. Too bad, the families cant see it as well. Thank you for putting your experience in words so that it may help another.

wow... now i know what to do in this situation. or what I THINK i would do, IF this situation was to ever happen to me. I would go to the nursing super WITH other nurses by my side to see if that could help.

Thank you so much for writting such a beautiful, helpful article. You have turned someone's SCAR into a STAR for MANY nurses.

Look at ALL THE THANK YOUS!?!?!? That woman's passage may have made it so others who want the same may have that chance through better educated and understanding nurses because we read your article!

Maybe this was how it was SUPPOSED TO HAPPEN! Her hubby and herself may have saved several others from this terrible passage into the next realm by they themselves suffering the outcome...

Of course, who in the heck am I to say how anything is SUPPOSED to happen! I wasnt the nurse whose heart broke! I was just trying to find the reason for yours, hers, and subsequently our, heartbreak.

What a touching story. Thank you for sharing.

Epiphany..............The respect and compassion you gave her while she was in your care is what makes you the great nurse that you are. There is no failure in that. :bow:

Specializes in critical Care/ICU-traveler.

A try heart-wrenching story that so many of us have had to witness.

Thank you for having the voice to say so eloquently what we would have a hard time putting into words. You are truly a gifted writer and a compassionate and caring nurse.

Specializes in Pedatrics, Child Protection.

Oh my god....

So beautifully written I cried.

I really don't know what to say, except Thank You....for sharing that story.

Specializes in Emergency.

While she did not have the DNR she wanted, I believe in her dying days she knew that there was a nurse caring for her with love and compassion. You did what you could do, and that was a lot. Thank you for expressing so eloquently a pain that many of us have experienced and carry with us.

Thank you so much for sharing. I hope the precious lady is resting in peace. You did your part so please dont be sorry. Hopefully this will be an eye opener for some people in the medical profession who wishes to impose these modern day technologies on people without thinking twice. God bless you.

Specializes in Wellness Coach, ICU, PACU, OR, Mgmt.

Of course this was the winning article a touching story, eloquently written! Fabulous!

A true representation of the humanity & inhumanity in healthcare today.

Thank you & Congratulations!