The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in medical/surgical ICU.

i was touched by your story...being a nurse, i think this is the hardest part of our job..thanks for sharing your story.

What a pathetic story .You did not fail your patient Her stuborn daugther who could not respect the last wish of an old woman did however i can understand your situation.This story goes to explain what most of us face when you have uncooperative patient relatives .

i just had to read this one more time....

Ethical Dilemas - where do we stand in the gap?

One has to wonder, Where is Utilization Review when really needed?

Between the dollar and common sense.

Specializes in ICU, Telemetry.

I don't know the answer. Maybe all I can do is just get people talking about a subject most don't want to even acknowledge. It won't bring my patient back, and it won't give her the death she wanted, but maybe it'll make her rest a little easier...

Specializes in Case management, UM, AL, psych, CD.

oh my goodness......... that was heart wrenching.

Specializes in CVICU.

This is wonderfully written and such a sad story especially when the situation is that there is no Living Will or POA and siblings disagree on the course of treatment. My question, however, is why wasn't she "eligible for a DNR"? Where I work, as long as you are deemed competent to make decisions about your care, which apparently she was when she sought out the living will, your doctor can write a DNR order at your request, or one can be placed based on the existance of a LW or POA. It matters not if you are 21 or 101, if you don't want anything done, have expressed those wishes either verbally or in the form of a legal document, then the hospital had no right to continue with the "heroic measures" to bring her back. Yes, the EMS workers were correct because obviously they cannot have records on every case/patient they respond to, but the hospital had a copy and should not have continued those measures.

It is so heartbreaking to live in a culture that so adamantly denies death that advanced directives can be overlooked, or, more often, never written leaving patients to suffer. This is the part of my job that I really, really hate.

Specializes in ICU, Telemetry.

It may vary from state to state, but in our state, you have to have a "terminal within 6 months" diagnosis (just like hospice) before the doc will write a standing DNR.

Well remind me not to become unresponsive in your state. That is very barbaric if you ask me, espeacially if they do not honor advanced directives.You obviously did not fail the patient, the state laws are probably from the first century.With the next generation of elders being such a large part of the population in the U.S. and the lack of healthcare for so many it is time these laws are revisited and updated to reflect reality.