My daughter's GFR is 4! HELP!

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I have just returned from my appointment with the transplant surgeon. I am a new grad nurse (MSICU), soon to be a new grandmother (Feb 2007), and will be giving my stepdaughter a kidney in the near future. Our story is a complicated one, but in April of 2005, Anne became very ill and ended up in the very unit that I work in. After 3 weeks in ICU, another on the floor, and several "call the family in, she's toast" calls, we are a year and a half into this illness, Rapidly progressive cresentic glomerialnephritis (excuse spelling please). Labs today of note BUN 106 and Creatinine 11.2.

She had an AV fistula done, and 4 subsequent surgeries on it, (her vessels are very "deep") She is now clotting off the needles at the moment of insertion (with an INR of >3). The docs are debating the need to dialyse her or just do the transplant. The big worry is if she clots off the new kidney. This girl is 23 years old and has been thru it, so to speak. Over Memorial Day weekend we traveled to Duke University hospital to have a "patch" placed in a PFO. She had TOF as a baby and it was repaired, but when she was hospitalized in April, she had a PE and blew the patch out. I told you it was complicated.

Any advise, assistance, words of wisdom are greatly appreciated, I have lots more info on her, but running out of room.. Thanks Cin

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Specializes in Med/Surg, Hospice.

I have no advice or knowledge, but just wanted to tell you that I am praying for your dear girl.

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know little of renal problems but she looks like she is due for some good luck

'give her our blessings

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Specializes in Nephrology, Cardiology, ER, ICU.

Good luck...I don't have any advice either - may I ask why the wait for the transplant?

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Specializes in hemo and peritoneal dialysis.

The surgeons should be able to bring the fistula closer to the surface, (which would require another surgery) In the mean time is there no hemocath access? Sounds like she needs dialysis now while she waits for the new kidney. Heparinizing of the needles sometimes avoids the initial clotting if the nurses know about that procedure. Keep us posted

Steve

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I dont have any advice for you but from a fellow West Virginian just wanted to let you know that I will be praying for you and your family. It sounds like you need some good in your life right now.

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Specializes in NICU.

I'm sorry, but we are unable to give out any medical advice on this website. It's against our Terms of Service to do so.

https://allnurses.com/forums/f192/terms-service-what-how-does-affect-me-144011.html

I wish you and your stepdaughter luck with the upcoming transplant.

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Sorry, I don't want med info, I was really just looking for emotional coping for a new grad and a "mom" trying to juggle the illness.

Goodluck on your pending delivery!

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