Help me remember the name of a very rare abd condition - organs turn gelatinous.

[demylenated]

5 years ago I worked as a hospice nurse. My first training day I went with the nurse to a little lady's house. We had to change her abdominal dressing.

It was open and draining, BECAUSE her "guts" were turning to gelatin. This is a very rare condition, and I can't seem to find it with out the official name (which I *used* to remember), which is very long!! haha.

Does ANYONE have an idea of what I am talking about?

It is fatal, it happens in the abdomen, and eventually (due to bacteria I believe) the "guts" just start to turn to gelatin and leak out.

Thanks if you can help :)

[NRSKarenRN, BSN, RN]

colloid carcinoma aka mucoid carcinoma, gelatinuous carcinoma, myxomatous carcinoma, carcinoma colloides

[Mochachild]

wow! i didn't know that colloid carcinoma had so many names. i thought the condition was pseudomyxoma peritonei as well.

pseudomyxoma peritonei specialty service

[nurseprnRN, BSN, RN]

eeeeeeewwwwww. i thought i had heard just about everything by now. poor thing.

[hecallsmeDuchess]

My God! That is some scary disease...wow!

[demylenated, BSN, RN]

Thank you!! I am 99% sure it was this: peritoneal mucinous carcinomatosis which is a type of Pseudomyxoma Peritonei!

http://www.ncbi.nlm.nih.gov/pubmed/7503361

I remember it, now, being referred to as "jelly belly."

It was an extremely sad case... terrible... frightening dressing changes because there was ...so...much...mucous!!! Undeniable the worst thing I've seen in my career.

And, it happened on my first training day. The only thing "neat" was she was Amish. Because of the severity of her disease they left us, as "outsiders", in to care for her. It is an amazing community and the love and support they showed toward each other was stunning. It is good to see that type of humanity still exists... BUT ANYHOW... that was not the point of my post.

THAN YOU for all your help!!!

[demylenated, BSN, RN]

Eosinophilic Gastroenteritis with a really intense presentation?

Thanks, but this was not it. Maily it is not as severe as what she had, and because of this: "EG typically presents with a combination of chronic nonspecific GI symptoms which include abdominal pain, nausea, vomiting, diarrhea, weight loss, and abdominal distension. Approximately 80% have symptoms for several years"

Hers was a fairly quick onset and demise. Intense is almost an understatement. It amazes me what the human body is capable of doing to itself!

Thanks though!!

[demylenated, BSN, RN]

Perhaps just very septic and dying ???

Dying, yes... Septic, amazingly, not really! There was a diagnosis that went along with it, someone pointed it out. It was pretty eye opening and quite an experience.

[demylenated, BSN, RN]

colloid carcinoma aka mucoid carcinoma, gelatinuous carcinoma, myxomatous carcinoma, carcinoma colloides

yup!! another name is the pseudomyxoma peritonei. i saw it mentioned in the article farther down when talking about the peritoneum! thank you!!!!

[demylenated, BSN, RN]

So, I am guessing it breaks down like this:

Broad: Colloid cancer

Specifically: Pseudomyxoma Peritonei

Type: peritoneal mucinous carcinomatosis

AKA, "Jelly Belly"

Not pretty... at all...

Thank you ALL for your help! I appreciate it!