I have just returned from my appointment with the transplant surgeon. I am a new grad nurse (MSICU), soon to be a new grandmother (Feb 2007), and will be giving my stepdaughter a kidney in the near future. Our story is a complicated one, but in April of 2005, Anne became very ill and ended up in the very unit that I work in. After 3 weeks in ICU, another on the floor, and several "call the family in, she's toast" calls, we are a year and a half into this illness, Rapidly progressive cresentic glomerialnephritis (excuse spelling
please). Labs today of note BUN 106 and Creatinine 11.2.
She had an AV fistula done, and 4 subsequent surgeries on it, (her vessels are very "deep") She is now clotting off the needles at the moment of insertion (with an INR of >3). The docs are debating the need to dialyse her or just do the transplant. The big worry is if she clots off the new kidney. This girl is 23 years old and has been thru it, so to speak. Over Memorial Day weekend we traveled to Duke University hospital to have a "patch" placed in a PFO. She had TOF as a baby and it was repaired, but when she was hospitalized in April, she had a PE and blew the patch out. I told you it was complicated.
Any advise, assistance, words of wisdom are greatly appreciated, I have lots more info on her, but running out of room.. Thanks Cin