CPAP: Use It And Live

The majority of patients I encounter in the ICU/CCU who have a diagnosis of sleep apnea do not use their CPAP machines. Those who DO use them seem to have better outcomes. Nurses Announcements Archive Article

I work in a cardiac intensive care unit; CCU and SICU together. As an ICU nurse, I'm well acquainted with the correlation between untreated sleep apnea and heart disease, stroke or sudden death. And I wish I had a dollar for every patient with "obstructive sleep apnea" listed as a diagnosis on their chart and no CPAP with them when they're admitted to the ICU.

Pauline (not her real name) came in for an MI, proceeded to have a CABG and then stroked while still in the ICU. Her history lists "sleep apnea." when asked if she brought her CPAP, she proudly held up a respironics bag. At bedtime, we opened it up and found an ancient CPAP machine and full face mask that may have fit her 100 pounds ago (did i mention that she was 5 foot 0 inches and weighed 140 kg.?) The humidifier was missing a part and the hose had toothmarks in it -- canine or feline toothmarks.

"When was the last time you used this," I asked, thinking that maybe this is her spare and her real machine is at home on her bedside table.

"Oh, I don't use it," she said. "I just brought it in because the office nurse told me I ought to."

Mentally slapping myself on the side of my head, I ask "why don't you use it?"

"i don't like having all that air forced into me," she says. Like that ventilator you're going to be stuck with is so much more comfortable? (I'm so proud that I managed to bite my tongue before actually saying this.) Sure enough, she failed her first three extubation attempts, got trached and is now in a long term care facility on a ventilator.

Hermann has a heartmate II ventricular assist device. He was readmitted not too long ago with a recurrent drive line infection. As part of the admission process, I went over his problem list with him -- and of course obstructive sleep apnea was listed. "did you bring your cpap?" I asked.

"i don't need to use it anymore," he said. "I have my heartmate now!" (for all of you nurses who haven't worked with heartmates, they're a left ventricular assist device. They're used as bridge to transplant, or even destination therapy for heart failure. Blood is routed from the left ventricle through the device and is returned to the aorta.)

Worse, when I read over his clinic notes, there was a note from a nurse practitioner stating something to the effect of "patient refuses to use CPAP at night. Instructed to use it for 2 or 3 hours during the day when he's watching TV, so he'll get at least some benefit from it." really? I doubt that the man is have sleep apnea while he's watching TV. By definition, one needs to be sleeping to have sleep apnea.

Then there was the man who came in for semi-elective valve surgery. Once again, obstructive sleep apnea was noted on his problem list. "did you bring your cpap?" I asked. "oh, no," exclaimed his wife. "He doesn't like it, so he never uses it." It's been five months and counting -- he's still in the ICU. The hypertension he developed subsequent to the untreated sleep apnea caused left ventricular hypertrophy and then he arrested post-op .

I was thrilled when last week's patient swore he used his CPAP faithfully. "I don't have it with me because I didn't think I needed it in the hospital and all," he explained. "But my wife can go home and get it."

His wife went home and got the CPAP. Interestingly enough, neither the patient or his wife had any idea how to set it up or how the mask fittings worked. What was he using the CPAP for? A paperweight? He's on his third admission for heart failure and they're talking transplant now. I wonder if some of his problems could have been avoided had he been actually using the CPAP he got four years ago.

It may be my imagination, but I swear there's a correlation between showing up with your CPAP and knowing how to use it and eventual outcome . . . Those that bring it and use it seem to do well and transfer out of the ICU promptly. Those who don't bring it, bring only parts of it, can't set it up or don't even pretend to use it usually do poorly. Maybe it's just that those who actually use their CPAP are more compliant patients in general, and compliant patients do better, but i swear that treating sleep apnea enhances patient outcomes.

The woman I admitted today -- with obstructive sleep apnea and heart disease -- claims she "has sleep apnea, but I don't need to use a CPAP. They told me I only had to use it at night, and I sleep during the day." I attempted to educate her on the correlation between sleep apnea and heart disease. "Oh," she said. "I guess I could use it, but it's just so difficult. You have no idea how difficult it is, strapping that thing on your face and trying to go to sleep."

I do know how difficult it is. I strap one on every night when i go to sleep -- and in the afternoon when I take a nap, too. It's uncomfortable, unsexy, inconvenient and unnatural. It just might save your life, though.

CPAP: use it and live.

Specializes in ICU, Ortho, LTC, Hospice, Anesthesia.

After just being diagnosed with moderate positional sleep apnea (25 apneic/hypopnic episodes per hour) and saturation levels dropping to 74% two weeks ago, I faithfully use my CPAP every night. Although the first few nights were difficult (the nasal pillows were too large), I actually look forward to sleeping with it now. It isn't as uncomfortable as one thinks, as long as there are no leaks, the straps are adjusted correctly and the machine is functioning properly. With adequate weight loss, I'm sure this machine will go away with pounds lost.

If you have patients under your care who are resistant to this using device, please have a respiratory therapist or consultant visit them for proper fitting and education about their disease; it may be the difference between life or death.

my husband( x 10 years) and I ( x 6 mos) both have c-pap machines--I used the 'nasal pillow' instead of a mask--the first thing we look at when we travel is---"where are the elec outlets?"--- we always carry an extension cord or 2 with us( we learned our lesson)--will be looking into the travel size with battery pack

Specializes in CCU, SICU, CVSICU, Precepting & Teaching.
my husband( x 10 years) and i ( x 6 mos) both have c-pap machines--i used the 'nasal pillow' instead of a mask--the first thing we look at when we travel is---"where are the elec outlets?"--- we always carry an extension cord or 2 with us( we learned our lesson)--will be looking into the travel size with battery pack

extension cords are a great idea. what else do you travel with?

Specializes in Management, Emergency, Psych, Med Surg.

You got me to thinking. I have a horrible sleep problem and I wake up with a sore throat from snoring. About two years ago I had a sleep study and the doctor told me that I was on the border of needing a CPAP. This story is a wake up call. I might reconsider getting one. Does it help you sleep better? Do you wake up less? I NEVER feel fully rested, ever.

I would always get very tired after work and my husband often found me asleep sitting at the kitchen table! ! NO more--I no longer have that great letdown in the afternoon--and I do wake up less. And now that I'm sleeping better so is my husband--as he no longer waits for me to start breathing again------ please go have a sleep study done, I should have listened to my husband sooner....

Specializes in CCU, SICU, CVSICU, Precepting & Teaching.
you got me to thinking. i have a horrible sleep problem and i wake up with a sore throat from snoring. about two years ago i had a sleep study and the doctor told me that i was on the border of needing a cpap. this story is a wake up call. i might reconsider getting one. does it help you sleep better? do you wake up less? i never feel fully rested, ever.

please get another sleep study. i sleep much better with my cpap -- i don't wake up as often and i feel more rested. my husband sleeps better because he doesn't have to listen to me gasp and snort and wake up panicked because i can't breathe. go for us -- and let us know how you do!

My husband gasped and choked and kept me awake with his incredibly loud snoring for years. I convinced him to get tested, and we found he has major sleep apnea. He now has a nasal pillow CPAP. When the tubes get moved around a little, the noise is quite loud, but otherwise it is a soft whisper, and it sure beats the snoring and waiting for him to breathe again.

By the way, Hubby had a heart attack a few years ago, when in his early forties. He has a large neck, and the ENT said his apnea is in the dangerous range (same as football players with 18 inch or wider necks who have issues with sleep apnea). I have to remind him to wear the CPAP constantly, but I am so glad he has it. He seems to have more energy during the day, too. In the past, he would fall asleep the moment he had a chance to be still for a moment (like one time when we were driving on the expressway). CPAP truly saves lives!

Specializes in Cardiac Cath Lab/Pacemaker/Geriatrics.

Well....ashamed to say...I have not been using my machine. Partly because of the flu I have had and the coughing at night is hugely annoying with the mask. But, it is getting better so I am going to start uing it again. And I am a RespiratoryTherapist so I know better. But it is very uncomfortable to use and I feel like I am suffocating sometimes. But....I have been able to keep it on most nights. Thanks for the great post and incentive to keep using it. No matter what.

I am using a 'nasal pillow' with my cpap and find it comfortable--see what your pulmonologist suggests--there are many many types of masks for you to choose from--there is even a site for masks that have a return policy( for a fee of course) but in any case ---continue using your cpap

Specializes in CCU, SICU, CVSICU, Precepting & Teaching.
well....ashamed to say...i have not been using my machine. partly because of the flu i have had and the coughing at night is hugely annoying with the mask. but, it is getting better so i am going to start uing it again. and i am a respiratorytherapist so i know better. but it is very uncomfortable to use and i feel like i am suffocating sometimes. but....i have been able to keep it on most nights. thanks for the great post and incentive to keep using it. no matter what.

the flu is an issue. some people get full face masks for when their noses are stuffed up, but for the most part i've found that once i put the mask on, it "blasts through" the stuffiness. coughing is challenging -- but if you paste your tongue up against the back of your upper front teeth on the roof of your mouth, you can cough without the air from your pap going straight out your mouth. cpaptalk.com is a wealth of information about living with cpap and making it more comfortable.

http://cpaptalk.com

Specializes in Med/surg, ER/ED,rehab ,nursing home.

I struggled for over 3 months to get used to my CPAP. I am hard headed about a lot of things, and would not let this beat me. My biggest problem was getting treated for the nasal congestion that I had. No full face masks back in the early 90's. So if I was not able to breath thru my nose, the CPAP did not do any good. But now all that is controlled, I am on my 3rd or 4th machine, the insurance company allows more than one mask/ gear replacement a year. I panic if told I can not use my machine. Love it, took it to Europe, too. And Camping...I have one that is just for that use.

I was diagnosed in 1990 after falling asleep one too many times on the interstate...only an 8 hr shift worked and I did not feel sleepy or tired. Until the car horns started blaring, I did not know I was drifting over 4+ lanes of traffic. No, I did not know what my problem was, but I had a good internist that directed me to the ONLY sleep clinic in town. Now there are several sleep clinics.

I have been on a vent since then due to complications from another surgery that led to infection and surgery in my lungs. A vent and a trach are NOT fun. Just on a CPAP now. Had to have O2 for awhile, once I got home. LOVE MY CPAP.

Specializes in pediatrics, public health.

Ok, Ok already -- I'll start using mine again! I hate the **** thing, but you're right -- heart failure and/or being on a ventilator would suck even more. I KNOW this, but each night somehow it's easier to leave the darned thing off -- or "try" for 30 minutes and then pull it off. I've managed to get used to it before, so I can get used to it again! (got my current one recently and haven't gained/lost weight so I'm sure it still fits -- just don't want to use it).

And I'll try even harder to lose weight in the hopes that then I won't need the darned thing at all! (but recognizing that weight loss may or may not make my sleep apnea go away).

Thanks for a great post!