the truth: NOTE: all cases of private duty nursing are strictly about the "child". not the animals, not the parents, not the siblings, not the friends, not the therapists, not the neighbors........ ITS ALL ABOUT THE CHILD.
moms only ask for a few things from their nurses. unconditional love, enthusiasm, companionship/playmate for their child, respect, a gentle touch, firm but tender behavior lessons.
following the original routine the child is used to.
dropping meds-how mom drops meds - nurses tend to change the routine to what they are used to and that will not work for the child. remember the child is used to a certain way for all her medical necessities being administered. normally the stress of new people in the home taking care of the child is stress enough alone so that is why parents like "routine consistance".
this may include a variety of daily routines such as placement of braces the child may wear (afo's, scoli soft brace, arm/elbow braces, etc), transfer from bed to wheelchair, standing frame, floor, or any other piece of equipment. the mom will know exactly the best way to do all things for her child. ***BUT DONT LET THAT EVER stop you from adding some of your own input on what you have watched with other families that she might not be aware of. parents appreciate this information because they depend on your "nursing information and teachings" just as you depend on their "parent information and teachings" in which the parent has learned since birth of the child and knows what will and what will not work and you have experienced in different homes or during school that she is not aware that will or will not work.... or work much better that what they have been doing for years!!!
this is strictly a two way street of information in order to make the child's life the best it can be with what God blessed this child with here during our earthly life.
moms ask that when you are with their child in their private home which by the way is over abundantly appreciated by us nurses who take their case, but also keep in mind that is a privledge for us nurses to be invited in their private home taking care of their most special child. parents have full trust in us while in their home and they commemorate and appreciate us so much and that is why we do the same for them. there should be no housework, no answering their landline phone, no nothing except complete attention and fun filled days with their child. and i should correct the housework part..... it is our jobs as nurses to maintain the area in which the child lives (bedroom, therapy room, etc.) with light cleaning such as putting away the clean clothes, linens, toys or equipment back in place, stocking medical supplies around patient for easy access, plus when supplies come in from medical supply companies it is our job to unpack them and put them away in their respected place. whatever involves the patient and the patient surroundings is what we as nurses are responsible for. nothing more and nothing less.
but in conclusion, whatever you would want if your were afflicted yourself or if your child were afflicted with some infirmity.... that is all the parent want from you is what you would want for yourself or your child. you will be surprised at how much you can learn from children with different disorders and how truly brilliant their minds are when given the chance to show you as you both learn together. they will teach and bring out traits you may never know existed within yourselves.
leave your nursing text books at home..... believe me each mom has her own textbook of her child on some shelf in the home!!!!
ENJOY YOUR LIFE DOING WHAT YOU ARE CALLED FOR. LIVE LOVE AND LAUGH.