nonossifying fibroma

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    My daughter is 13 years old and about a year ago while playing softball she fractured her ankle and twisted her knee. When they xrayed her knee the ER spotted the tumor almost the entire diameter of her distal femur. They didn't say anything to us but referred her to an orthropetic dr who was puzzled and said he had never heard or seen one that lg and referred her to an oncologist in Akron, OH. They also told her no wt bearing on that leg what so ever for fear that it would break. The lg tumor is located on the back of the thigh and she also has two small ones below the knee. I was told that these form at 4-6yrs old and fill with bone at 7-8 yrs old usually. Does anyone have more insight into these nonossifying fibromas? They xray them at 3 months and they were slightly larger or appeared so. They are to xray in 6 monthes now. She complains of knee pain alot and I am wondering if it might be referred pain.
    Thanks for the information.
    michellelpn
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    We used to have on staff one of only 50 Orthopedic-Oncology surgeons in the US. I believe that we did have some patients with this. It is a non malignant process. It seems that Dr. E. said that the treatment is observation. It's a teenage thing. The pain is certainly to be from the knee too. I hope I'm not misdirecting you.

    Try this site.

    http://bonetumor.org/page51.html
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    Our son, 17, was diagnosed with non-ossifying fibroma last summer and underwent bone graft surgery in November. I have never known anyone else who had this so I would love to hear from you.

    Thank you.
    Last edit by sirI on Mar 27, '07 : Reason: edit personal information
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    Quote from Luise
    Our son, 17, was diagnosed with non-ossifying fibroma last summer and underwent bone graft surgery in November. I have never known anyone else who had this so I would love to hear from you.

    Thank you.
    My 16 year old son was diagnosed with non-ossifying fibroma last week, after two months of tests and doctor visits. He is a very healthy boy otherwise (never been sick outside of a cold and chicken pox) and very involved in school, church and community activities. He injured his right knee about 18 months ago, and has had intermitant pain ever since. Our family doctor diagnosed a mild bursitis, initially, but 2.5 months ago he (my son) began to complain of "grinding" in his knee when he walked. I took him straight in to the doctor, who ordered x-rays and the roller coaster ride began.....
    We have been told that all that is required is observation and monitoring Q 3-6 months by x-ray. Surgery has not been discussed, but may be an option if his condition worsens.
    The literature suggests that this condition is self-resolving whenthe bones stop growing, so that is good news.
    Anyone who can enlighten me further
    V. Loeffler
    Hamilton, Ontario, Canada
    Last edit by sirI on Mar 27, '07 : Reason: edit personal information
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    i was just diagnosed with non-ossifying fibroma today, i am 18, almost 19 years old. i hurt my knee playing baseball, i was hit in the knee by a metal bat and tore my mcl, and streched some ligaments and stuff. i was diagnosed with bursitis, and went through about 6 months of physical therapy, this was at the age or 11 or 12. 6 or 7 years later the pain came back, so i went to the doctor and they took x-rays, and diagnosed me with non-ossifying fibroma. they also think that i have cartiledge damage because i have clicking and popping in my knee and pretty bad grinding. i am schedueld for a visit to the orthopedist, and they will tell me what is going to happen from there. it sucks, because i am a culinary arts student, and my career requires me to be on my feet for hours on end, this would totally ruin my dream of becoming a chef if it persists, but all i can do is hope. more information wanted, since most of the reading i have done says it is asymptomatic, and mine is very symptomatic. thanks, scott.
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    Quote from Luise
    Our son, 17, was diagnosed with non-ossifying fibroma last summer and underwent bone graft surgery in November. I have never known anyone else who had this so I would love to hear from you.

    Thank you.

    My son is 17 and had the bone graft this past friday. I was wondering how is your son doing now. We found out he had it on a visit to our ER for an ankle xray and found out he had this in his lower tibia and it was 70% we watched it for 9 months with no change. Now I hope we made the right decision.

    Thank you.
  10. 0
    my 12 year-old son was just diagnosed through x-ray with a nonossifying fibroma. I have been researching this and found that they are benign but can require a bone graft if there is a fracture or a high likelihood of fracture (i.e. if the child is athletic). However, there is another diagnosis possible but extremely rare. Desmoplastic fibroma is also benign but will grow and can require amputation. physicians do not want to do further diagnostic testing on these nonossigying fibromas, but it may be necessary if the fibroma continues to grow or doesn't heal.
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    how big was his fibroma? why did they choose to do a bone graft? how long did he have this before you decided to do the bone graft? My son was just diagnosed and his is fairly large and in an eccentric area. where was your son's? mine was in the fibula posterior at the knee
  12. 0
    This thread is almost seven years old. We can not provide any type of medical advice and with the thread being so old, much of it may be outdated. Please contact your provider for up to date info.


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