The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in geriatrics, geripsych.

:nurse:i can not begin to feel your pain, not to mention hers. it is sad that even when a person goes to the extent of making their own decisions about their life and their wants that there are those among us who still believe it is their decision. they are selfish people. god bless you for talking to her and letting her know it is ok. i wish for the daughter that no one to ever take away her right to choose. :saint:

Specializes in Operating Theatre and Occ. Health.

1. you are a born writer with an inherent talent for story-telling. use it and get stuff published. i'm a published author and i know talent when i see it.

2. very moving and sensitively told story, novel presentation but - oy vey! - what a gut wrencher. tears not far away all through and like many others, i've been in that situation myself a time or two. but you put so much more depth to it. thank you and very well done!

3. i had to intervene in my mother's care some years ago when she had a mild/moderate stroke. a few years previously she'd had a sigmoidcolectomy for cancer but being in her late 70s, i told the family not to worry about recurrences as she probably wouldn't live long enough for them to happen!

after her stroke she was admitted to a small stroke unit, a site that had been a little cottage hospital. my brother rang me (i lived 250 miles away) to tell me mum was upset and terribly scared because they were going to do a colonoscopy the next day. (i'm the baby of 5 children but they've all aways looked to me for guidance in such matters.)

i rang the unit and spoke with the doctor who explained that they needed to find out if she had any recurrence but couldn't explain exactly what it was they planned to do if they found any! so i cancelled the procedure and advised them that if they proceeded, i would be filing charges for assault!

two days later i visited the hospital and found she'd had a couple more small strokes so now was somewhat aphasic. my sister and i arranged for her to be immediately moved into a private nursing home run by a friend of mine where they accepted my instructions for dnr and no treatment if/when she got a chest infection. she died from yet another stroke about 2 weeks later but at least she died in peace and comfort with two of her daughters beside her.

i'll always remember my brother's somewhat bemused reaction to my cancelling the colonoscopy which was "oh, i didn't know you could do that"!!

How tragic. I am going to keep copies of this...with my Five Wishes and hopefully in the event my loved ones decide to dissent my wishes this will illustrate the suffering caused when one is unable/unwilling to let go and let God...

Sadly, it happens every day. It is so very hard for some to just let go. Most of the time, these people don't understand the physiology of the body and dying. A well written article. Thank you for sharing that with all of us.:redbeathe

Specializes in Med/Surg, Telemetry.

how could her daughter do that to her mother??!?!?! knowing what she wanted!!! that makes me sick! my parents would come back and haunt me forever!

The woman was dying but due to advances in medical intervention the process was reversed. A heart stops because the organ is no longer capable of function and the same goes with pulmonary function.We have advanced so much in medical technology that it is the medical ability to intervene that determines life or death. At 89 she has the right to have a DNR order written. The fact that pushing drugs , inserting tubes,or shocking the heart back to a rhythem can "prolong" viability and we can prolong the inevitable does not mean this person has a "life'. What it does is give the appearance of being alive and this is distinctly different than life.

Specializes in Alzheimer's, Geriatrics, Chem. Dep..

Dear God that was hard to read, and witness. I think we have all been there. Thank you and God bless you.

The woman was dying but due to advances in medical intervention the process was reversed. A heart stops because the organ is no longer capable of function and the same goes with pulmonary function.We have advanced so much in medical technology that it is the medical ability to intervene that determines life or death. At 89 she has the right to have a DNR order written. The fact that pushing drugs , inserting tubes,or shocking the heart back to a rhythem can "prolong" viability and we can prolong the inevitable does not mean this person has a "life'. What it does is give the appearance of being alive and this is distinctly different than life.

Specializes in ER, PICU.

beautifully written. If only families knew, and would understand.

Specializes in Med surg, Critical Care, LTC.

A tragic but all too true story, it's is told every day, hundred's of times all over the country. I've lived it myself more than once. I couldn't have written it better myself. BRAVO!

Specializes in Med Surg, SICU, MICU, CCU, Pulmonary.

Absolutely fantastically written. I do want to share one thing...HER FAMILY FAILED HER. I am only 32, but have a lot of health problems and have spent this entire week going over what I want/don't want to my 2 MPOAs. I will also show them this. Thank you!

:redbeathe

Specializes in Medical/Surgical among others.

Wow, what a story. Its amazing that nothing could have been done to allow her will to stand its grounds. Wow.