The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in LTC, assisted living, med-surg, psych.

This is a tragic story, beautifully told.

Thank you for sharing it.

Specializes in ER, Pulmonary.

Thank-you for this beautifully written piece. You didn't fail this patient. I know it feels like it. Unfortunately, after that tube is placed, DNR is over with. You handled it professionally and the best to your ability. You would have found me in a closet crying after this was over. You allowed dignity to show through in this patient's last breaths. Don't ever feel guilty about having feelings. When you stop having them is when you need to get out of nursing. You are a beautiful person.

Specializes in ICU/Critical Care.

thanks for taking the time to so eloquently describe some of the emotions and nights that my colleagues and I work through in the ICU.

I'm touched. And as others have said before me, please try to reassure yourself that you didn't fail her, it was her family and "the system." We do everything we can within the limits we're given - we're not the Angels that we're portrayed to be - as much as we hate to admit it. You do an amazing thing every day, you go to work and you CARE.

You told your story, and her story, so beautifully. Both have touched so many more people than they otherwise would have. I'm certain that you have changed more lives than you could possibly know. Well done.

Specializes in midwifery, NICU.

:cry:

Both stories of human suffering on this thread are just so poignant..........

Heartfelt cuddles to those dealing with the outcomes, whether family members or nurses, you are in my thoughts.

This is one of the few things I've read that made me weep.

Thank you.

Specializes in Community, OB, Nursery.

Thank you for being there.

Specializes in none.

Thanks for telling this so beautifully. Selfishness of her daughter failed her, not the care and compassion you were forced to show her. Rest assured God sees these things.

Specializes in Peds,ER,FP,Med/surg/oncol, Hospice.

OMG what a sad story. I do not think that you failed this woman at all. Like said previously Her Dr and her daughter failed her. I too have seen this in the hopsital setting. I've seen DNR's overturned and people sadly having things done that they never wanted. It is such a sad sad thing. Thanks so much for a reminder on how to treat our patients with respect. Beautifully written.

I could somewhat understand why the daughter did what she did, most of the time it is hard to let go, BUT the saddest part is not respecting your parents wishes.

:up:It was excellent. Beautifuly written. It is a situation when we nurses compelled to do unnecessery procedures insted of leading client to a peaceful death.

Specializes in med/surg, ortho, rehab, ltc.

So beautifully written...Using quotes from the Living Will as if the dying patient is speaking directly to family and nurse. And she was.

Thank you for sharing this.