Hi. I'm not sure if I can be of any help, but I'll try. Here's some info. I found "In recent years, the term CMI has been used synonymously with tonsillar ectopia or chronic tonsillar herniation in a wide variety of congenital and acquired disorders. The radiological definition of CMI has been reported as tonsillar herniation of at least 3 mm or at least 5 mm below the foramen magnum. However, this definition is limited to a single criterion and makes no reference to clinical symptoms or the presence or absence of associated findings such as syringomyelia."
I got the above from http://www.chiariinstitute.com/research_finding.pdf
(First paragraph on pg. 20 at the VERY top...)
Sorry...I don't know what else to tell you...I know of a few ACM sites, but they're resources for patients.
I DID find this...: "The treatment for Chiari malformation is neurosurgery. Most surgeries for Chiari report a 70% success rate in helping with symptoms. There are four categories of surgery. There are: 1) decompression of the back of the brain by removing a portion of bone in the skull at the base of the brain (suboccipital) with a craniotomy which is the opening of the skull and upper cervical area. Also, a laminectomy which is the removal of the portion of the bone to gain access to the spinal nerves and opening the tissue covering the base of the brain with the placement of a patch to cover the area where the bone was removed. 2) draining the syrinx which is a cavity of fluid in the spinal cord and opening the spinal cord to drain the area with possible placement of a catheter leading from the syrinx to another space to create a pathway for constant draining. 3) making a pathway for fluid to drain by cutting off the lower tip of the spinal cord. This procedure is called terminal ventriculostomy. 4) suctioning out the fluid from the syrinx. There is a 30% failure rate in all of these procedures. Some doctors like to treat the Chiari malformation at the same time the syrinx (if one exists) is treated. Syrinxes are not always present."
If I find anything else, I'll let you know...again, I apologize. I'm just a neurosurgical patient myself...college transfer [STILL hoping to do nursing (neuroscience: combined neurology/neurosurgery/ENT)]. Sighs...
Oh, and I'm sorry that I'm late in posting/wandering onto here. I 'venture' onto here in 'spurts'. LOL...
I hope everyone's doing OK!
This site, and you all are FANTASTIC!!:-)
23y/o; "former premie" @ 30 weeks, 2#2oz., 10 1/4 in. long; hydro due to Grade III IVH(brain bleed), 12 surgeries, last revised 4/20/05, MIGRAINES dx'd 5/13/05;smallest baby in North Carolina to have a shunt inserted, CP dxed @ 2y/o;aunt to David Colby(5y/o) & Jordan Lee born 10/22/02(3#12,16 1/4"@2:27PM EST via C-section @ 36 weeks)--3y/o; Riley "Taylor"(niece---born:4/21/04@3 wks. early weighing 5# and 17.5"); ;-)future ANP(Adult Nurse Practitioner) working on neurology/neurosurgery floor, I hope!!;-);Dad passed away 10/3/03 due to acute renal failure, cardiac arrest, and anoxic brain injury("official" cause of death)