I am looking for information regarding Creutzfeldt-Jakob disease from anyone who has cared for a hospice patient with this disease. I have my first patient with this disease and want to be able to give her the best care/comfort I can. Can anyone give me an idea of what is coming or complications we may be up against? Supplies/meds it may be good to have on hand?
Any ideas would be appreciated. It seems to be a very fast, progressive path we are on and she is only 37.