Who is Responsible for Discussing End-of-Life Treatment Options?

Nurses General Nursing

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Who is responsible for discussing end-of-life treatment options with the patient.......the physician? The nurse? In most instances it is the physician's responsibility to initiate discussion and determine a plan of treatment. But what if the patient is not given information on all the options? What if the nurse does not think the patient and family have been given adequate information or disagrees with the physician?

According to the ANA Code of Ethics, "The nurse's primary commitment is to the patient, whether an individual, family, group, or community." How does this come onto play with regard to end-of-life care? What happens when the desires of the patient are in conflict with the desires of the physician? Or what if the physician's plan of care seems more aggressive or unrealistic to the nurse in light of the patient's condition or prognosis?

One of the primary roles of the nurse is that of patient advocate. Nurses need to be prepared to advocate for the patient when conflicts arise between the patient's wishes and the wishes of the physician and/or family members. Although it is the physician who prescribes the plan of treatment, the nurse must be ready to assist the patient in exploring options for end-of-life care. No matter what setting you practice in--hospital, long-term care facility, clinic, or home--it is of utmost importance to address the patient's comfort needs as the patient sees them. This is particularly true in providing quality end-of-life care, allowing the patient to prepare for and face death on his or her own terms.

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Specializes in Peds, Med-Surg, Disaster Nsg, Parish Nsg.
grntea said:

If someone thinks that only a physician can give this kind of information and hope, then, well, that's wrong; an ill person may not have the months it's gonna take the physician to come around to doing it. Physicians are usually so relieved that someone else, I.E., the nurse, has taken care of this part of the business for them; they are in the business of cure and their education is so often really lacking in end-of-life concepts, language, and vision. We can help them, too.

I totally agree with this.

So many physicians are focused on the cure that they forget to think about the end of life care. To some, addressing end-of-life issues means they have failed.

And sometimes, nurses can relate to patients better.

Specializes in Med Surg - Renal.

Easy 2 word answer:

The doctor (in conjunction with patient, and/or family/guardian or poa).

Simple

If only the real world were so simple.

In reality we are all responsible for addressing this need.

One of my most eye-opening experiences as a nursing student, was when I was assigned a pt w/advanced ovarian ca.

Her pcp wanted her discharged to home and receive hospice services.

Her onc wanted her continuing aggressive tx.

The family members looked like they were watching a tennis match betw the opposing dr's.

The pt totally gave up in trying to express personal wishes, totally overcome by differing views.

I found the whole scenario a disgrace.

There was absolutely no team work whatsoever.

Ultimately, family agreed to further treatment.

Before initiating a new chemo agent, pt given 'fluid challenge' to see if kidneys would tolerate.

They didn't and she died.

This all happened in the course of the 6 wks I had her.

During this time, I had become 'close' w/pt and family.

Pt expressed her desire to just go home but if family wanted her to continue w/tx, she would defer to their wishes.

(actually, there are a lot of pts like this.)

I shared pt's wishes with family.

Dtr pleaded w/mom, to try just "One more time"...

Of course pt agreed...And as stated, died in hospital.

What the heck do you do when doctors disagree so openly and vehemently?

This oncologist was psychologically exploiting family's vulnerabilities and indecisiveness.

It was just plain wrong, in so many ways.

It was that particular pt that I knew I had to try and ensure pts died the way they wanted to.

The rest is history.

Leslie

Eta: this was a teaching hospital...Which explains many of the futile txs given to pts...

All in the name of a clinical opportunity for some overly enthused student.

The whole thing is a disgrace. The doctor, any of them, should initiate it. They certainly know more than I do about treatments, prognosis, diagnosis etc. ( maybe some of you are more knowledgeable I am not...) like another poster said, the patient first has to know they have a possibly terminal condition. I have seen many patients who don't even know that! The doctors all turf the responsibility of telling the patient onto another doctor or don't even discuss the topic. Some doctors are great at getting palliative medicine involved others no so great.

Specializes in Peds, Med-Surg, Disaster Nsg, Parish Nsg.
anotherone said:
The whole thing is a disgrace. the doctor, any of them, should initiate it. they certainly know more than I do about treatments, prognosis, diagnosis etc. ( maybe some of you are more knowledgeable I am not...) Like another poster said, the patient first has to know they have a possibly terminal condition. I have seen many patients who don't even know that! The doctors all turf the responsibility of telling the patient onto another doctor or don't even discuss the topic. Some doctors are great at getting palliative medicine involved others no so great.

Totally agree with this. The doctor should initiate the discussion.......but so many times it gets ignored until the patient is on death's doorstep.

Specializes in Med/Surg, DSU, Ortho, Onc, Psych.

I don't know re other countries, but I should clarify that RNs in Australia must have the primary doctor talk to the family first; it's a legal and ethical requirement. On hospice units, the doctor must see the family first before we go into any details re treatment or lack thereof.

We are not allowed to discuss end of life decisions with the family otherwise, though we can give information after the doctor has seen them, and scribed in the notes re DNR status or whatever.

My apologies for not making this clear.

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