Lupus just diagnosed!!

Nurses General Nursing

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Just got diagnosed with lupus. It explains a lot of symptoms that I have had for the past year. Have at times been told I was neurotic.

Anyone out there that can give me some personal info? I'm still in the denial stage. Am I going to be disabled soon? How much is stress a factor in lupus - level has been high lately.

Specializes in Specializes in L/D, newborn, GYN, LTC, Dialysis.

Here are some sites that provide support and guidance. Education is key! so is having a really good rheumatologist on the team!

http://www.lupus-support.org.uk/

http://www.wehavelupus.com/

http://www.healthcyclopedia.com/musculoskeletal-disorders/connective-tissue/lupus/support-groups.html

http://www.lupus.org/

http://arthritis.about.com/od/lupus/

http://www.mayoclinic.com/invoke.cfm?id=DS00115

http://www.amazon.com/exec/obidos/tg/detail/-/0195132815/002-7184117-1856868?v=glance

http://www.emedicinehealth.com/articles/5382-1.asp

Hope these help you on your way to understanding and living with Lupus. I wish you the very best.

I know what a bad dx can do to your life...keep informed, check out the sites given you by previous posts..take control of your life find out from other people with same dx about what you can do in everyday life to promote your health

find out what research is being done and if you are in an area for trials i know that you don't want to be a guinina pig but sometimes you can be on the cutting edge...this is not a death sentence...get you a good md as also mentioned...if they are the type that say let them worry about your health...get out...you need an md who respects you and who you will respect...

keep us informed of how you are doing...GOOD LUCK

Specializes in rehab; med/surg; l&d; peds/home care.

i was diagnosed with lupus in march of 2001, if you want some personal info pm me, i will be glad to share my story and some advice.

first word of advice: rest.

heather

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