Should I be mad at Hospice? My mother...

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was admitted to in patient hospice and died about a week later. At the time of her admission her Dr. (and a second opinion) had given her from two to six months to live (she had non small cell lung cancer that had spread to her liver). We decided to take her to Hospice due to the fact we were not able to control her nausea at home, and the hospital could find no physiological cause on a CT scan (such as an impaction). Her pain was under under very good control with BID MS Contin (30mg) and immediate release morphine pid (15mg).

The very minute she was admitted the nurse said that the Dr. had ordered Haldol for her nausea. I had never heard of Haldol being used in this context, but figured that the Dr. must be aware of some "off label" application of which I was not aware. That night (her first) mom became progressively more agitated and suffered from both visual and auditory hallucinations (she had never before experienced anything like this). Finally, after struggleing to keep her in bed (she kept wanting to get up due to various hallucinations) I called the nurses and they gave her a shot of Atavan and she slept. From that point on Mom took a distinct turn for the worse. Furthermore, the nurses continued to give her more Haldol almost everytime she would even sit up. Two days after admission they performed an enema and this seemed to releave much of her nausea, and she experienced no more emesis. However, the nurses continued to give her Haldol although they did at least admit that it was also being used for agitation in addition to nausea. Mom, was extremely weak by this point not even able to hold her head up (although she pleaded that I place her on a bedside commode rather than suffer the indignity of a foley or diaper).

I became more concerned after telling my nursing instructor who reacted with alarm at the use of this drug in this context. He said that to his knowledge Haldol was not used for nausea, and espcially not in elderly women on opiates. I confronted the nurses at hospice, and one admitted that Dr. XXXX used the drug to "keep the patients comfortable because most of them were not so fortunate as my mom to have family there twenty four/seven". What galls me is that this was such a beautiful facility with amenities far in excess of any residential care facility that I had ever visitied before. However, there were few if any patients out of there beds to enjoy the facility. My mom died ten days after admission and I feel that she may have been "cheated" of potential quality time with myself and her two year old grandson.

Is the use of Haldol in this context common at other in patient facilities?

Specializes in LTC,Hospice/palliative care,acute care.
Ibut overall, Ativan and Morphine should have done the job, not multiple doses of Haldol. I would question this seriously.
But mom is gone-torturing one's self about this is un-productive....

it won't change anything-it is time to accept,let go and move on...If I felt that my loved one was not suffering I would be grateful for that...death is not always to fast and calm.....

Specializes in Case Manager, LTC,Staff Dev/NAT Instr.

Roland my condolences are with you, but it appears to me reading your threads you are angry at this hospice facility, I have worked in hospice and we always went the Ativan, Morphine method and I have heard of Haldol being used, you have a right for your concerns and if I read correctly in your posts you voiced your concern several times over this matter, shouldn't the next step been if you felt you were not being heard to have her removed because if she was up driving upon admission there she shouldn't have been admitted in the first place, our protocol was for end stage pt.'s they had to have at least six mths or less to live with progressive declining. I can't actually speak in your case because I don't know the whole situation but above are some suggestions as to why if you were so unhappy with the facility you allowed your mom to stay? I have seen this type of behavior it's part of the grieving process and you may say I'm crazy and I don't know what I'm talking about but it is what it is and you are looking for someone to blame, and unfortunately it's the hospice facility, look at it like this she is not suffering anymore, she enjoyed her life, so it's time you focus on your studies, and move on you so you can enjoy yours as a RN oneday, sure all facilities, doctors, nurses are not perfect and as a soon-to-be nurse you will soon see this very problem again but this time you will be the healthcare provider dealing with a unhappy concerned family member. I pray that you get through this.:)

Roland my condolences are with you. .......................nurses are not perfect and as a soon-to-be nurse you will soon see this very problem again but this time you will be the healthcare provider dealing with a unhappy concerned family member. I pray that you get through this.:)

lisadlpn2brn, Thank you for your great thread. Roland, I could not have put it any better. My condolences are with you. Many years ago when I was a student nurse I used to get so angry with the way some establishments ran, how some staff (doctors & nurses) worked and I did several times put my (large 9 male) boot in. I did loose my father in a local hospital with a "hospital" problem. Iwas then a qualified RN and able to put some pressure on the place so that it did not happen again to someone else.

That was a long time ago - I am now 62 and working in paliative care/aged care and enjoying the work. (It is very satisfying to have a bit of control at last.) You do sound Roland as if you have a wonderful compassion and passoin for nursing. It is a pity what has happened. Stay nursing the patients need you.

Sincere regards, Mister Chris. :specs:

Specializes in Everything but psych!.

Roland, I am so sorry for your loss. I am also so sorry you are going through such a difficult time. It sounds like your mother was a very special person. I know that if I had cancer and it was terminal, keep me comfortable and let me go. We will meet again.

Many times all we really can do for our loved one is give them the gift of a"good" death... is too true. Let me sleep........ :saint:

Specializes in Addictions/rehab, mental health, hospice.

While I thoroughly object to the idea of oversedation without cause, I must say that Haldol is often used for terminal agitation. The research clearly indicates that thorazine and haldol are preferred meds over benzodiazepines for terminal agitation. She may have been closer to death already than anyone realized.

Losing a parent is hard on us all. After the loss of my father, I changed my specialty from cardiac to hospice care. My father was diagnosed with lung cancer and told he would live 3 months or so. As a nurse, I thought that was stretching it. In fact, he died a week later. I was a daddy's girl and didn't want to lose my dad but at the same time I didn't want him to suffer.

As far as haldol and whether you should be mad at hospice......Haldol is commonly used for nausea in hospice. They probably kept giving it to your mother because it is to be given on a schedule to control nausea and keep it from recurring. When I started with hospice, I had never heard of haldol given for nausea and I had always had bad thoughts about haldol but I have seen it work and work well. You didn't say what dose your mother was on but if I had to guess, it was at a low dose and no matter what the nurse may have told you I would be assured that it was given for nausea not to keep your mother down.

I hope I am not stepping out of line here but I must say just a few more things. One, for you to have so many ill feelings towards hospice, you must not have been educated enough by the staff. I know in our hospice we do much teaching with the patients families.

Secondly, your nursing instructor was very wrong in the response given. Evidentally (and unfortunately) nursing instructors deal very infrequently with hospice. Haldol is commonly used for nausea, just as atropine drops are used for excessive secretions. Your nursing instructor probably didn't know that either. I wish that more nursing schools would let their students do a rotation through hospice. It would be a learning experience for students as well as instructors. In the year I have been with hospice, I have learned many things.

I, for one, thank God for hospices and I thank God daily for allowing me to work with patients and families in their final days.

We don't have an impatient Hospice facility where I live. If a patient has a symptome that we can't get under control then the MD can put the patient into the hospital long enough to get that symptom under control. It's not very often that we have to send a patient to the hospital. Our patient's are at home, nursing home or assisted living facilities. I have seen enough to know that unless the doc's can guarantee a cure if I am diagnosed with Ca then I want morphine, ativan, and whatever else makes it possible for me to be home and cared for by my family.

haldol is often used in small doses for nausea with very good results. and sometimes in conjunction with other meds for nausea.

haldol in small doses can cause agitiation and confusion and and hallucinations and can cause a pt to look like they have terminal agitation, it also should not be used in pt's with low kidney and liver function--which is most hospice pt's

that all said it is used TOO OFTEN in the hospice setting

the thought may be ' so that the pt can die comfortably'

but

that is WRONG morally if it is premature

hospice should be focused on the pt enjoying each day to the most they can, people who are NOT good at controlling symptoms may over react by using meds prematurley -- to MAKE the pt comfortable--when truth be told they are comfortable and don't need the medications the staff desire to give them.

instead they should be allowed to enjoy every moment that is theirs.

then when needed meds be adjusted for pain and suffering.

if a pt recieves correct medications through the course of their Dz then there shouldn't be sudden increases in meds or new powerful meds that affect the pt negatively.

FYI as most pt's die they need less narcotics not more because the liver function is diminished.

sorry for you loss, and yes i think you have a reason to be posting here and wondering about the care. it is too easy to say that if a pt dies peacfully then it was a good death, this is WRONG if it is a premature death, one brought on at least in part by medication and staff desiring to treat what they think they see.

It is unfortunate that the hospice nurses did not explain what was happening to your mother.Nausea and agitation are common symptoms in hospice and sometimes more pronounced when the liver is affected by the disease process. Haldol is often used in hospice for both agitation and nausea and it is frequently given when the person is on narcotics. (Ativan can also be used for both.) Nurses who do not work in hospice are usually unaware of how medications are used in end of life care.

Different medication most likely would not have allowed you mother to live longer. Studies have proven that doctors frequently "over-estimate" life expectancy by more than 50%.

I am so sorry that you were not given better information by the hospice nurses about the medications that were being used and for what reasons. I know that restlessness and agitation are very difficult and uncomfortable for a person when they have little strength and the body needs all of its energy to breathe and keep the heart working. That is why it was so important to keep the agitation under control. It most likey added to your mother's comfort.

was admitted to in patient hospice and died about a week later. At the time of her admission her Dr. (and a second opinion) had given her from two to six months to live (she had non small cell lung cancer that had spread to her liver). We decided to take her to Hospice due to the fact we were not able to control her nausea at home, and the hospital could find no physiological cause on a CT scan (such as an impaction). Her pain was under under very good control with BID MS Contin (30mg) and immediate release morphine pid (15mg).

The very minute she was admitted the nurse said that the Dr. had ordered Haldol for her nausea. I had never heard of Haldol being used in this context, but figured that the Dr. must be aware of some "off label" application of which I was not aware. That night (her first) mom became progressively more agitated and suffered from both visual and auditory hallucinations (she had never before experienced anything like this). Finally, after struggleing to keep her in bed (she kept wanting to get up due to various hallucinations) I called the nurses and they gave her a shot of Atavan and she slept. From that point on Mom took a distinct turn for the worse. Furthermore, the nurses continued to give her more Haldol almost everytime she would even sit up. Two days after admission they performed an enema and this seemed to releave much of her nausea, and she experienced no more emesis. However, the nurses continued to give her Haldol although they did at least admit that it was also being used for agitation in addition to nausea. Mom, was extremely weak by this point not even able to hold her head up (although she pleaded that I place her on a bedside commode rather than suffer the indignity of a foley or diaper).

I became more concerned after telling my nursing instructor who reacted with alarm at the use of this drug in this context. He said that to his knowledge Haldol was not used for nausea, and espcially not in elderly women on opiates. I confronted the nurses at hospice, and one admitted that Dr. XXXX used the drug to "keep the patients comfortable because most of them were not so fortunate as my mom to have family there twenty four/seven". What galls me is that this was such a beautiful facility with amenities far in excess of any residential care facility that I had ever visitied before. However, there were few if any patients out of there beds to enjoy the facility. My mom died ten days after admission and I feel that she may have been "cheated" of potential quality time with myself and her two year old grandson.

Is the use of Haldol in this context common at other in patient facilities?

I concur with others have said but would like to add that most patients that are eligible for inpatient hospice care are too critically ill or symptomatic to leave their rooms. The reason why most are there in the first place is because their symptoms are out of control in a different setting. It would be surprising to see several patients in our ICF out of their rooms. Many doctors will tell patients that we see as having only a few days to a couple of weeks left that they could have a few months - this is a common occurrence that we see.

Nearly all patients 99.999% are incontinent in their last few days of life -whether they are medicated or not. I am very sorry for your experience. It sounds as though the hospice did not take much time with education. Did they share any written material on signs and symptoms with time frames associated with the symptoms?

Specializes in med surg, oncology, hospice last 4 yrs.

I worked at a small hospice that used haldol very successfully for control of opioid induced nausea. We would start it at 0.5 mg bid, a very low dose, and if need be, we could increase it to 1 mg bid. We could also add benadryl if there were any signs of eps. Look at the haldol results on this study. http://www.mywhatever.com/cifwriter/library/70/4938.html frompalliative care perspectives.

My condolences on the loss of your mother. Coming from a total stranger it may be meaningless, but it is heartfelt.

My mother was just admitted into Hospice on yesterday and already today they are giving her Zyrtec and they also said they were going to give her Haldol for nausea. She didn't even seem nauseous. She was eating and seemed to be doing great. Although, she was nauseous when she came in initially.

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