My son was a former 22 1/7, 499 gms with ETT, tape and drapes. Stayed in the NICU for four months, discharged home on 1/4 NC three days past due date PO feeding. Grade 2 left sided IVH. He's now seven and full of life. Just lost his second tooth and just completed first grade. Loves watching cartoons and eating chocolate. Hates homework.
The healthcare team asked what we wanted. We said "we don't know." The team said, "If he comes out crying and active. We'll do what we can for him." When my wife pushed him out, it was the longest moment of silence. No one moved, no one breathed. We all just waited and he cried three times and the team was on him.
Intubated for two months. Born October 28, extubated to BCPAP December 24. Feedings started DOL 3. Oral care started within first hours of life.
Did he get septic during his NICU stay? Yes, but his nurses were amazing and advocated for him constantly. I mirror my NICU nursing care after these amazing nurses.
Did we have a Neo pull up a chair, while we read to him in his incubator and tell us our son "would never amount to anything and be a vegetable." "He has a 15-22% chance of being CP or a 46-67% chance of being cognitively developmentally delayed." Sure did. After this, the Neo never came back to talk to us.
But this kid is everything to us. He solidified my passion for NICU, so much so I am graduating this December with my DNP-NNP. I fight for these micro's and give their parents hope. I allow them to have their joy and share their pain if their little ones don't make it. I know what it's like being in their shoes and seeing their kid be poked and prodded and not being able to do anything about it. I fight to let parents do skin-to-skin with these "fetuses" because literature says it helps. I comfort the parents when they cry because they got to touch their kid or hold their kid, cause no one else would let them.
Do all of them turn out like my son. Nope, but some do. They deserve this chance.
"A person's a person, no matter how small. And you very small persons do not have to die. If you make yourself heard."
Here is my son's page: https://www.facebook.com/littlemiracle2012/
Every kid deserves a chance.