magicpez

magicpez

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About magicpez

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  1. Recessive Epidermolysis Bullosa -I need advice

    magicpez replied to NurseLisa64's topic in General Nursing

    I should add too I stumbled upon this thread via Google Alerts for EB. I am not a nurse. I am involved with many EB Patients online and have worked with a few in person. I will be living with a severe...

  2. Recessive Epidermolysis Bullosa -I need advice

    magicpez replied to NurseLisa64's topic in General Nursing

    You are going to be dealing with what most doctors who have even seen this disorder call the most horrible thing they have experienced. The fact that it never gets better is going to be rough. Stick...

  3. Recessive Epidermolysis Bullosa -I need advice

    magicpez replied to NurseLisa64's topic in General Nursing

    You're doing a great thing. Feel free to ask this same question at Epidermolysis Bullosa Friends where you will receive answers from people dealing specifically with