ConcernedMama

ConcernedMama

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  1. Help with understanding clotting disorder

    ConcernedMama posted a topic in General Nursing

    I came across, while googling, a thread where someone asked about INR and Thrombin time, or protime. There were so great answers so I figured, why the heck not, I will just throw out my children's...

  2. Help with understanding clotting disorder

    ConcernedMama replied to ConcernedMama's topic in General Nursing

    NrsKarenRn, my twins have an appointment with our local Hemophilia Treatment Center in December. Thanks for your

  3. Help with understanding clotting disorder

    ConcernedMama replied to ConcernedMama's topic in General Nursing

    Hi princess, My 10 year old daughter has a diagnosis of hypodysfibrinogenemia, confirmed by two separate hematologists. My twins have had preliminary blood work that indicates they have the same...

  4. Help with understanding clotting disorder

    ConcernedMama replied to ConcernedMama's topic in General Nursing

    Wow! Thanks. I have spoken with NHF before and they never mentioned treatment centers. Maybe this is something that helps with people who have limited insurance coverage? We have Blue Care Network but...

  5. Help with understanding clotting disorder

    ConcernedMama replied to ConcernedMama's topic in General Nursing

    Thanks. I've seen

  6. Help with understanding clotting disorder

    ConcernedMama replied to ConcernedMama's topic in General Nursing

    Thanks you guys. I did contact the HF years ago when my daughter was diagnosed and they help with getting tags and such and camp information. But the camp is outrageously expensive, I don't know how...

  7. Help with understanding clotting disorder

    ConcernedMama replied to ConcernedMama's topic in General Nursing

    Ok so I am focusing too much on INR? It was tested on all three kids, well more specifically the prothrombin time was tested, and that included INR. At any rate, the prothrombin time is elevated. For...

  8. Help with understanding clotting disorder

    ConcernedMama replied to ConcernedMama's topic in General Nursing

    I think I just found an answer as to how she diagnosed my daughter as dysfibrinogenemic as well as hypo... "Patients with a decreased fibrinogen activity, but normal fibrinogen antigen, produce...