504 plan for Currarino Triad??

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NEW school nurse here. Spoke with a mom and found out her child has Currarino Triad w/ many ongoing medical issues. Seems to me the student could benefit from a 504 plan but i've never written one. Guidance please... :)

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Specializes in kids.

Here are some links

Currarino triad | Genetic and Rare Diseases Information Center (GARD) – an NCATS Program

Currarino syndrome | Radiology Reference Article | Radiopaedia.org

Usually, I try to figure out what they need to have in school to be on an equal footing with other students. Medical documentation will help support the accommodations.

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Thank you! I haven't ever heard of it so I did a little reading before calling mom. She was very grateful that I did that. She stated it would be helpful if we encouraged bathroom visits but doesn't want the student dinged for not being in class. Also, the student has lots of medical appts coming up that she will miss school for. Does a 504 sound reasonable in this case?

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Specializes in School Nurse, past Med Surge.

You would not write the 504. You would give guidance as to what the student might need, but admin should be the one writing it.

They will need something from the doctor stating the diagnosis.

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Specializes in kids.
Thank you! I haven't ever heard of it so I did a little reading before calling mom. She was very grateful that I did that. She stated it would be helpful if we encouraged bathroom visits but doesn't want the student dinged for not being in class. Also, the student has lots of medical appts coming up that she will miss school for. Does a 504 sound reasonable in this case?

Yes! Of course she should not be dinged for time in bathroom.

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Specializes in kids.
You would not write the 504. You would give guidance as to what the student might need, but admin should be the one writing it.

They will need something from the doctor stating the diagnosis.

I always write them...along with 504 coordinator and I case manage

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Specializes in ICU/community health/school nursing.
Thank you! I haven't ever heard of it so I did a little reading before calling mom. She was very grateful that I did that. She stated it would be helpful if we encouraged bathroom visits but doesn't want the student dinged for not being in class. Also, the student has lots of medical appts coming up that she will miss school for. Does a 504 sound reasonable in this case?

Yes because of the missed time. Check with your counselor or diagnostician about how to kick that off. Also, in my district, it's a parental request so once you know how it happens, call mom back.

Patting you on the back for going the extra mile for this kid!

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As the school nurse, you can write a health plan, which could give accommodations in class, but not the 504. If you are at a public school, your district is required to have a written 504 policy which explains the evaluation process. There has to be evaluations from several sources (teacher recommendations, test scores, etc) and the medical diagnosis is just one.

This explains the requirements. (Page 16 especially.)

https://www2.ed.gov/about/offices/list/ocr/docs/504-resource-guide-201612.pdf

You should definitely be part of the 504 team, but don't let them make you think that you have to write it just because it is a medical issue.

We already go above and beyond!

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