She is so dear to me...

  1. 6..."going on 7" if you ask her.
    Teeny weeny little thing...barely weighing in at 20 kilos.
    A Cystic Fibrosis patient who has a multitude of respiratory and GI issues and has been admitted to our hospital 64 times since birth.
    An ex 24 weeker, in-vitro firtilazation, a "miracle baby..."
    High functioning Autism and also diagnosed with OCD
    I love her
    She is a quiet storm
    She looks so small lying in the bed hooked up to a pulse ox, TPN, lipids, IVF and G-tube feeds
    But she is so brave
    She endures countless procedures,
    Endoscopy after brochoscopy after colonoscopy.
    Lab draws, respiratory treatments, vitals signs, assessments
    She is cooperative through it all, and loves it when you let her do help with flushing her port-a-cath
    Admitted this time for bloody stools
    Endoscopy revealed gastric varices
    "Active bleeding.."
    Her time is near, the doctors tell us
    Portal hypertension,
    and her liver is failing
    H:H critically low
    Transfusion after transfusion
    Her mother is trying to hold it together
    Trying to hold on to her "Miracle baby.."
    I leave work in tears
    Thinking...what will happen to this little brave soilder once she gets tired of fighting..
    She is my little "miracle patient.."
    And she is so dear to me...
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    About Pedi_needi

    Joined: Mar '07; Posts: 7

    7 Comments

  3. by   muffie
    poor wee thing
  4. by   traumaRUs
    She is so lucky to have such a wonderful nurse caring for her and her mother.
  5. by   nurse_drumm
    pedi....

    now that's what nursing is all about! you're an inspiration, and though you don't know me, i'm proud to be called a nurse along side nurses like you. keep up the good work, and never let anyone bring that special gift of yours down. much thanks to you, sweet pedi....

    nurse_drumm
  6. by   Jolie
    That is absolutely beautiful. I bet her parents would be touched by this, and I hope you've shared it with them.
  7. by   vrhodes
    Kids with CF are so special. They are not here on earth for all that long, but they touch so many people and make us remember what is important.
  8. by   ElvishDNP
    Beautiful poem. I too hope you have shared it c her family. My guess is that when she is tired of fighting she will go to a place where she's not suffering any longer. That's what I believe, anyway. And her life and what you have done for her will have mattered. Thanks for sharing your heart with us.
  9. by   perfectbluebuildings
    Quote from vrhodes
    Kids with CF are so special. They are not here on earth for all that long, but they touch so many people and make us remember what is important.
    Amen.

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