A Nurse with POTS Disability: A Great Success Story!

Imagine yourself back in nursing school again, but only this time, you can't answer your instructor's patho questions quickly like you did in A&P, in which you were an expert in. Instead of sleeping the night before clinical, you lie in bed for 7 hours hoping to get a snooze, but you don't get any. You get dizzy spells often, indigestion, breathing issues, unexplained anxiety, and the doctors aren't able to figure out what's wrong with you. I went through nursing school like this for 2 years, with a condition that affects the autonomic nervous system and practically, my whole body. I never expected to undergo this struggle, let alone the hardship of nursing school, but I fought back. This is my brief, personal success story that I would like to inspire all future and current nurses, disabled and non-disabled alike with the theme: Never give up. Ever. Nurses Disabilities Article

Today, I want to announce to everyone here that I'm thankful for everyone's tips, advice, suggestions, and so much more on this great website. I don't know how I would have gone through my struggles without AllNurses.com, it's such a great place for everything nursing related. Well, I finally got in the mail my RN License and I went jumping for joy, down my neighborhood. The feeling was surreal, seemed so out of this world.

But prior to all this, I was struggling with an unknown disability throughout nursing school. I knew I wasn't the best student in theory, but I worked hard and delivered for my patients no matter what in clinical. Several times, I would get primary syncope and orthostatic intolerance, intense flushing, brain fog, headaches, IBS, sleep apnea, felt like I had to manually breathe, and a slew of other problems. It just came out of nowhere. Before taking the NCLEX-RN, in April I went to the physician to ask for Special Accommodations but got shot down, because he was afraid the Accommodations would affect my job eligibility so he refused. A few people on this site agreed as well. I wrote about that in this post here: Dr refuse to sign accommodations for NCLEX.

At this point, I was thinking "Great, I have health issues, but can't get extended time or help." Flash forward to October and I was diagnosed with POTS, or Postural Orthostatic Tachycardia Syndrome - just a little over a week before my NCLEX. POTS is a little known autonomic nervous system dysfunction that primarily causes orthostatic intolerance (Bear in mind OI has been well known for years), where the person's position change from supine to standing would cause either high or low BP and intense tachycardia. There's also decreased cerebral blood flow, which explains brain fog. But it also comes with a lot of other symptoms and conditions like IBS. Thinking like a nurse, I wore an abdominal binder, medical grade compression stockings, and put myself on a high Na diet with lab work done periodically - before the doctors even suggested those ideas. ?

So there I was, with an NCLEX in a week, sick, having some financial problems, had people doubting that I couldn't pass because of my condition, and the all too familiar creeping anxiety after finding out the diagnosis - a diagnosis that has plagued me all these years.

But do you know what? I refused to give up or re-schedule my test. I refused to get special accommodations. I refused to give in to this disease. I chose to fight on. :angrybird1: 3 days before the exam, I went on a break, went shopping, worked out, had fun with the family. The night before, I prepared my clothing, breakfast, faced the alarm clock the other way, did a little prayer, and somehow, went to sleep. That was surprising that morning I woke up because I normally stay up all night due to anxiety and insomnia. Whether it was the alarm clock technique or the little prayer that did it for me, I truly don't know. But I walked out on the NCLEX at 80-or so questions and a smile on my face.

Went home, took a nap, and did the Pearson Vue Trick - got the good pop up! I defied my disability without help and turned away my doubters.

I did it.

Today, reflecting on my history, my struggles, the license I now hold in my hand, and a job offer already, I just wouldn't want my story to end in any other way. This was my very own personal underdog story and I want to share this with all my fellow pre-nursing students, nursing students, fellow nurses disabled or not, and human beings in general. ? I don't know what awaits me in this new upcoming chapter in my life, but I hope to count this story as one of the many countless success stories here on allnurses.com.

Thank you all.

CONGRATULATIONS!!! :laugh::):singing::D

I have only heard of POTS within the past couple of years.....I had an assisted-living resident whose diagnosis I figured out before the doctors did, after doing a ton of research. It is quite the challenge, but it looks like you are more than equal to the task. Good for you!!! YAAAAAAAAAY!!!

Thank you!! :)

Certainly, POTS is a challenge but I have it somewhat managed. I thank nursing school for that, it's taught me well on management and interventions of various diseases. It's now slowly becoming recognized as a problem. I know that places like Cleveland, Vanderbilt and Mayo Clinic are trying to find out more about it in studies so I have high hopes. In fact, I hope to participate in one myself - whether the treatment works or not, I just want to help out my fellow POTsies. By just mentioning it on this site, I aim to spread knowledge about it to people, nurses, and other health care professionals. Awareness is power!

Hi CrazyCoconut,

Congratulations on the new chapter in life that has begun for you!!

Thank you for sharing your story it is great to see that you did not let your condition and people's opinions deter you from pursuing a career in nursing.

As a fellow pre-nursing student that happens to have a disability, just wanted to say keep it up your doing a great job.

Specializes in Gerontological, cardiac, med-surg, peds.

Congratulations!!! :up:

Congrats! My mom has POTS and I know how debilitating it can be. You did a GOOD thing getting through nursin school with that on your back. Congrats on beating the odds!

Specializes in pediatrics; PICU; NICU.

I remember reading your original post about the problems you were dealing with and I'm so glad to hear you finally got a diagnosis. Even though it's a challenge to deal with, at least you now know what it is you're dealing with.

There's a website I use a lot to connect with others who have the same health challenges as I do & I've learned tons from others about things that help them as well as sharing things that have helped me. I don't think we're allowed to post links to other sites so I'll PM you with the information.

Congratulations. I have POTS too. Its difficult but you can do it. I have been a nurse for five years. I was diagnosed two years ago but have had it for about thirty years. Gatorade helped me through many nights. Just make sure you always have water with you.

Wow! Thank you so much for telling your story. I'm in nursing school, and I also have POTS. It's so encouraging to see you and other nurses rising up to the challenge to overcome this illness. It has even and definitely hard to deal with at times, but I refuse to let it beat me down. I actually just helped start a support group in my state, and we had our first meeting today. :) I wish you the best as you start your career as a nurse.

Specializes in M/S, LTC, Corrections, PDN & drug rehab.

Congratulations! It's so great to hear success stories like this! :D

Congratulations on passing =) I just wanted to say I also have POTs. I tried to send you a private message (But I don't have enough post..lol). Anyways..I believe I've had it since highschool and went through college and then working for 3 years before getting a diagnosis. I have had tons of testing done before but for the most part everything came back "Normal". Except for in September I had a tilt table test which finally gave me a diagnosis and relief that I wasn't "Crazy" (I feel sometimes being a Nurse the Doctor passes some judgement and is just thinking I think I have all of these symptoms just from being in the medical field. Which wasn't true at all, but it did take 9 years to get a diagnosis!) Anyways, good luck with working! It actually hasn't interfered at all with my job mainly because I work evenings and I have the majority of my symptoms in the AM! I just wanted you to know you aren't alone because I have the same condition and work as a Nurse!

Specializes in ITU, Surg, District & School Nurse.

Congratulations! My kids have POTS, I've probably got it too but not as bad as my kids, it makes life tough, so way to go you!!!!

Specializes in Trauma, ER, ICU, CCU, PACU, GI, Cardiology, OR.

First of all, Congratulations on your latest achievements. Unquestionably, as I read your post it is the most admirable and achieving real story that I have ever read in All-Nurses. Needless to say, you're truly an inspiration and a hero for nurses with ongoing disabilities, and those who will become nurses in the future. All I can add is, now that you have conquered all of the obstacles in your path, I wish you the very best straight from the heart as I send you a warm hug from across the miles...Aloha~ dance.gifdance.gifdance.gif

22.jpg

I salute you! What a story ! You will be a great nurse because you "understand" what patients go thru to get well. I hope you have a long and happy career like I did!