My first dump and run

Specialties Geriatric

Published

I know as well as anyone that has worked in LTC that we should not put ourselves in the position of judging the families of those that require long-term care. The sweet old man that no relatives ever visit may have been an abusive father that severed his own family relationships with a heavy hand. The cute little old lady might once have been a raging alcoholic that showed her children no love stronger than her next drink. And family members may have exhausted all other options for care before ever considering LTC as the final and safest option for a family member in the progression of an illness when they find themselves at our door. However, it was heartbreaking to play a role in the scenario that recently played out at my facility, leaving us feeling more like workers in a kennel that found an abandoned puppy.

As often happens with multiple admissions in a day, the supervising nurse didn't have time to thoroughly read all the admission paperwork, just knew we had a new resident with the primary diagnosis of dementia expected to arrive late morning. Well, late morning came and went, then early afternoon. Not long before second shift two women came in and went to the empty room. An aide overheard the young lady tell the woman, "I have to go to the bathroom, I'll be right back." The aide went to tell the supervisor that our new resident had arrived, and the care giver went to the bathroom but she'll be right back. A couple minutes later, the supervisor headed to the room and introduced herself to the new resident, I'll call her Molly. Molly asked where the woman was they were coming to visit, and the supervisor was a little confused. Molly said her niece told her they were going out shopping but they were going to stop in and visit someone for a minute on their way. At this point the supervisor comes out to find out where the caregiver was and an aide on the other wing said she left a few minutes earlier (no one saw her use a bathroom). Now the supervisor tries to tell Molly that we're at "**" and we're a long term care facility and she's going to be staying with us for a while. Well, that didn't go well.

Molly is a very convincing dementia patient. We've all seen them, they appear to be as competent as you or I in conversation. And for about half and hour we were pretty sure that there was a mistake and she shouldn't be staying. She was angry, but appeared competent, and said either we were going to call her a cab or she was jumping out that second story window in her room because she was NOT going to stay here one single night. Fortunately our social services professional is fantastic. It fell to her to spend a good bit of time after that trying to explain that she was going to stay with us for her safety. There were many tears, some threats, and definitely no acceptance long term, but she agreed to stay the night. We got a wandergard on her by telling her it's the wristband she will use to get her meals. She spent her evening wandering the halls, with her pursue, sitting in different chairs so she could look out all the windows. She agreed that she could use some help getting changed and ready for bed, she goes to bed at 9pm by her account and in the morning she would take a cab back home.

As the supervisor completed the admission the paperwork stated that the family decided not to tell her ahead of time about relocating to our facility because she would probably refuse to get out of the car. I can't imagine that hearing the news from complete strangers was any more comforting to her, but maybe her reaction to family members was potentially going to be worse. I feel badly for all of them, but Molly most of all. I'm trying not to judge, but I wouldn't even do that to a pet, forget a family member. The son is supposed to visit at some point- apparently when they called he said he would come in a few weeks. We'll do our best to get Molly settled and I think for a while we'll just keep a box of tissues on us, we used a lot of them last night.

I wish none of you had similar stories, but I'm sure you do. Thanks for listening to mine.

Specializes in LTC and Pediatrics.

Another scenario I have a hard time with is where one spouses promises the other that they will "never' put them in a nursing home and then has to. We had that recently and they were both not happy about it. He has since adjusted. The wife comes in the morning and leaves when he goes to be and tends to hover. She does not seem to be able to relax. I chalk it up to her feeling guilty about having to place him in a nursing home.

Specializes in LTC.
Another scenario I have a hard time with is where one spouses promises the other that they will "never' put them in a nursing home and then has to. We had that recently and they were both not happy about it. He has since adjusted. The wife comes in the morning and leaves when he goes to be and tends to hover. She does not seem to be able to relax. I chalk it up to her feeling guilty about having to place him in a nursing home.

We have a few of those as well. They will come in first thing in the morning and won't leave until their spouse is in bed in the evening. They also micromanage every little thing. It can be very draining on staff. I understand that they likely feel some guilt, but please. Go home once in awhile before we have to admit you as well.

I've seen my share of all different kinds of family dynamics in my 28 years of long term care. And as a stepdaughter of a stepfather who had a godawful case of dementia along with almost every single kind of chronic illness you can name, I suffered through listening to him verbally abuse my mother EVERY DAY the last 5 years of his life. She had promised his "real" children she would never place him in a nursing home. Yet, they would not lift a FINGER to help her take care of a demented, incontinent, bilateral amputee. I am the only one of my mother's children that lives in-state, so it fell to me to help her; relieving her to get out of the house on some days, running her errands for her on others. I literally cringed every time I heard him yell and curse at my mild-mannered mother. He never slept at night, suffering from horrible sundowning, so the most sleep she ever got was trying to nap while he slept during the day. But he was a wonderful husband to her before he became ill. Now, on the other hand....

My mother in law became demented before she died and I was expected to take care of her, as she had two sons and one of them was just a plain old idiot. The other I got lucky enough to marry. :) She had NEVER cared for me; she thought her son had married "beneath" him, she thought I was a crappy cook, a crappy housekeeper, a crappy mother. However, when she needed medical advice, she didn't hesitate to pick up that phone or show up unannounced at my door.....guess I wasn't a crappy nurse since my advice was free. She constantly berated me about something I did wrong (according to her) waaaaaay before she ever developed dementia. I was 18 when we married, and I was over 40 when she first got sick. I put up with her verbal and emotional abuse many, many years before the dementia beast got her. My husband, after years of trying to "keep the peace", finally just stopped visiting her. He wouldn't allow our kids to visit her without us. He told me numerous times he'd had a miserable childhood, that she was always criticizing him and his brother, and even his dad, as well. He thinks that's why his dad passed away from heart disease so early. He said she had always been "difficult to love". I told him I found it rather difficult to not wish her dead. :)

So, after she became unable to care for herself, my husband and I had ZERO qualms about placing her in a facility. I never lost a minute's sleep over it. Every time we visited, she offered to "leave everything to us" if we would just take her home and care for her. No ma'am. Not falling for that. In the end, the idiot brother agreed, got her to sign a financial and medical POA, took her to his attorney's office to put the deed to the house in his name, to the bank to withdraw all her cash assets and give to him, and then took her STRAIGHT BACK TO THE NURSING HOME. All this when she had been declared incompetent to make medical decisions. You just can't make this stuff up. I felt sorry for my husband as he lost half his inheritance and just was so tired of his family he didn't fight it. But, in the end, I laugh. I laugh because my MIL reaped what she sowed. I laugh because the idiot brother thought all that cash was cool; but ended up having to pay for her funeral expenses because she'd let her life insurance policy lapse. i laugh because the house was poorly constructed and he's had to spend a fortune in repairs. I laugh because the idiot brother married a shrew and a harridan that makes his mother look like Mother Theresa. I'm grinning now as I type this. :D

I said all that to say, we long term care nurses, I think, are a special breed; we see all kinds of family dynamics, live through all kinds of family dynamics, and put up with some of the most unimaginable cursing, spitting, kicking, drooling, crapping, screaming people that ever lived. And that's just the employees!! :D

Specializes in Critical Care, Med-Surg, Psych, Geri, LTC, Tele,.

Re: Mama Jules post: this is why I think high school curriculums should include volunteering in a nursing home.

I think many lay people simply don't know what it's like to care for an elderly demented person. Let alone do most people understand that they could end up violent, mean and with diminished cognition.

While I don't wish to live in a nursing home when I'm older; I more so hope that I don't need that level of care.

If I do, I don't want to burden my kids.

When I work with people who are demented or suffering from Alzheimer's or otherwise mentally ill, I tend to think:

"There, but for the grace of God, go I." 😓

Speaking as a family member that's had a young family member with dementia it is the most horrid experience to have to take them to a facility. You may not say you would do it but seeing the way they react - violent, screaming, refusing, tears, acting like a stubborn kid it's horrible! I agree they should have told the family member once they were on the locked floor but it is the hardest thing to do - try to have a little empathy. The night we dropped them off (mind you we had everything ready, comfort items, decorations, etc and we told them once we were there). There was screaming and crying, threats of violence, and it was truly awful.

The heartbreaking things I see are countless. Young woman, cerebral palsy... Admitted with full body cellulitis, stage 3's one t shirt and a box of markers. Lady nearing 100, terminal bladder cancer, both hips affected... No family visited in the year I had her... But kids showed up the day after she passed to collect her tv, radio and jewelry. Another lady, came from assisted living for her second stay with us. First stay she fell on her face and her whole face was purple. Second stay she was dehydrated, malnourished and septic uti... She only ate when her family came to visit and AL doesn't keep tabs like that on their residents. Little old man, total hip, easily 98... Surgeon said he wouldn't last long but did the surgery anyway... Bed bound, blind deaf and 80 lbs soaking wet... But surgical notes implied a new piece of equipment was used. Lady in her 70s dying of cancer, a+o to 3, hubs was mpoa... Iv fluids and abt with a pic, ostomy, peg tube... She cried and begged us in tears to not hook up her first feeding. She was ready to die, hubs wouldn't let her go and he doctor shopped until he found ones willing to do whatever he wanted. Her nurse had me come in with her because she couldn't hang that jevity without crying herself. Hubs had her declared unable to make her own decisions once she started to refuse treatment. Those are just he ones I recall right now. Humans can be awful.

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