More Questions/Prayers Needed

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sooo....

my baby sister has started track this year. she just turned 13 last month. problem is, her joints have been swelling up, mainly her ankles. she has been icing them down for the past several weeks, so... last week, my mom took her to the clinic. and the doctor is ran some lab work. he is testing for juvenile rheumatoid arthritis, lupis, and a few other auto immune disorders that mom couldn't remember. her hands and finger joints have been swollen and difficult to move for a while now, and she has been taken to the doctor's at least once prior to this visit in regards to this.

in the back of my head i wondered if they should have ran these tests back when she first went to the clinic the on the first visit when we first noticed that her fingers and hands were swollen, but it's too late now.

in our family history we have my mom's brother had true red cell aplasia when he was in junior high/high school, then died at 36 due to lyposacrcoma, and my mom's dad has fibromyalgia and a weird type of athritis.

today, after more than a week of waiting, we got the test results back. all of her arthritis panel came back negative. she was anemic, and there was blood in her urine (she was on her period). so, we will have do a repeat cbc and urinalysis.

my uncle's true red cell aplasia issues started right after a routine physical showed him to have anemia.

tomrrow we go and see a rhumatologist. we will know more after the appointment.

so....keep my baby sis in your prayers...she is only 13 yrs old...:crying2:

I'll keep your sister in my thoughts and prayers :redbeathe

I'm glad to hear that the doc doesn't think it's RA, but I know how frustrating it is not to have anwsers.

My daughter has a lot of pain and swelling in her knees and they haven't been able to give us any anwsers either. She is only eight years old and this has been going on since she was three; so I completely understand where you're coming from. I just thank God that they haven't found anything serious and pray that it's something that will get better and not worse. I'll pray the same for your sister....

Specializes in Family Nurse Practitioner.

Sending good vibes her way! Unfortunately autoimmune disorders, if that is what this is, often take a while to diagnose but imvho are definitely familial so based on your family history I would continue pursuing answers. Hugs, Jules

Maybe she just needs to take it easy for a while. Not do, too many physical activities, pretty much stay off her feet. More sitting down and keep her legs elevated as much as she can. Maybe it's not even an autoimmune disorder, she probably just overworked herself. It couldn't hurt to try.

Specializes in Psychiatrics.
Maybe she just needs to take it easy for a while. Not do, too many physical activities, pretty much stay off her feet. More sitting down and keep her legs elevated as much as she can. Maybe it's not even an autoimmune disorder, she probably just overworked herself. It couldn't hurt to try.

When I say that she is athletic, I mean in her build, she is about 5 foot, 4 inches, although, she may be about 5 5 by now, and probably doesn't weigh much more than 120. She is tall and skinny. Granted she is up and about, I seriously doubt that she pushes herself too much. (Although it is good advice and she is no longer in track. She won't go out for softball or basketball because it hurts her hands too much to catch the ball. She avoids sports that cause her pain. She thought that with track she would be ok. Apparently she was wrong)

Both my mom and I, as well as my sister, expected the usual aches and pains that starting a new sport would give. But we did not expect her ankles and feet to swell so much that she was barely able to walk after her first track meet. She was crying soo much after the meet and the following day she had to ice her feet most of the night and during classes to make it through.

My gpa has an arthritis associated with fibromyalgia, my dad has a serious arthritis dealing with his back that will probably put him in a wheelchair before he turns 60, he is 47 right now (and I will probably spell this wrong) achondriolos spondylolysis, as well as arthritis, just about everyone in my family has some sort of arthritis. And in our family, we are the masters of MURPHY's Law, sooo...with us, you can never be too careful.

But....my baby sis is taking it careful. She isn't going overboard, is is taking it easy. For now, the tenative diagnosis is reacitve arthritis, until more lab results come in, or until more symptoms decide to rear their ugly heads.

AGAIN....THANK YOU FOR ALL YOUR PRAYERS!!!!!!!

Just wanted to post:

If your sis does have RA, it doesn't have to be a horrible diagnosis. I work with a 22 year old gal who was diagnosed with RA in elementary school. She runs 3-4 miles a day, several times a week. She also does a weight lifting class 1-2 times a week, and tries to do yoga at least once a week. The idea is to develop her muscles to support her joints. She occasionally needs to take an anti-inflammatory, but if she keeps her weight within a normal range, she does pretty well. She hasn't even needed to see her rheumatologist since she was in junior high.

Good luck with your sis! I have a daughter her age, it would kill me to not know what was going on, or how to best help her.

Specializes in Psychiatrics.
Just wanted to post:

If your sis does have RA, it doesn't have to be a horrible diagnosis. I work with a 22 year old gal who was diagnosed with RA in elementary school. She runs 3-4 miles a day, several times a week. She also does a weight lifting class 1-2 times a week, and tries to do yoga at least once a week. The idea is to develop her muscles to support her joints. She occasionally needs to take an anti-inflammatory, but if she keeps her weight within a normal range, she does pretty well. She hasn't even needed to see her rheumatologist since she was in junior high.

Good luck with your sis! I have a daughter her age, it would kill me to not know what was going on, or how to best help her.

Thanks sooo much for your post. I know that the medications now have improved so much over the years. But right now its the not knowing whats going on that is killing us. I hate to see my baby sis in pain. My baby sister's weight is within a normal range, and I doubt that her weight will ever be an issue for her. Our family history is rather dodgy, but my sis stays active, despite the pain that she has.

Specializes in Psychiatrics.

Got more lab results in....

My baby sis's anemia has resolved itself. X-rays to her hands show no indications of abnormal results, and that her growth plates have yet to close (which is normal for her age). The doctor is sending her x-rays to a radiologist for further analysis.

The only thing that seems to be abnormal so far is they ran a test (the name of the test is escaping me) and it shows that she has had a strep infection recently (she has had several a year over the past several years).

Doc wants to see my baby sis her in a month or so to do a check up, and if any swelling occurs, he wants to see her immediately.

For now, she is back to her usual self, she ran the mile in PE today, (granted it wasn't very fast...lol...) but she is getting back to her regular self. No swelling or major discomfort in over a week in a half. So...that is good news.

We are just hoping for answers, and for her pain to STAYING AWAY.

Again....thank you for listening.....

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