Hello Everyone, It has been a couple of years, I think, since I have posted here. This might be kind of wordy so I apologize in advance. I got injured in 2004 and was off work until 2014. I am back now with restrictions. I have a son with special needs but very high functioning. He had a job and shared an assisted living home with his best friend and round the clock staff. He had a high quality of life despite the seizures and mental delays. From early 2013 until 2015 he was declining greatly as his seizures increased in number and severity. In 2015 they added Onfi to his other seizure meds. It worked but he had to be in a LTC for rehab for 3 months. The Onfi stopped the seizures but also took his balance and ability to walk as well as caused him to slur his speach. His body finally adjusted and rehab gave him back what he had lost. He was seizure free for 9 months for the first time in his life. Unfortunately in early 2015 he started having seizures again but far fewer and less frequently. During that last 18 months he got to do everything on his wish list, ie fly on a plane, visit Disney World and go to Tennessee. So we were very shocked on Aug. 17, 2016 when staff came to our door to tell me that our son, who had just turned 29 in July, had passed away. He did not have a seizure, they found him face down, he had been drawing a picture, he still had the pencil in his hand. They started CPR and when the squad got there they established and air way, used a lucus device, and pushed all the meds. They worked on him for nearly an hour until the ER MD told them to call it. The COD was SUDEP a complication of epilepsy I still can't believe it is true and we are completely devastated. Nineteen hours after he passed my mother suddenly passed. My mind is mush and my heart is broken. I lean towards isolating myself like I did after I got injured. Of course that is what I am doing now. I badly want to get my RN but don't know if I can handle the rigors and schedule of a traditional school. I completed all of the Excelsior but MD would not clear me for the cpne. So I need to start all over. I live in the state of OH and the OBN told me that it is up to each school be it traditional or online decides what kind of " reasonable accommodations" they are willing to provide. I can sit, stand, and walk but not for long periods of time. So I would have to be able to kind of rotate between sitting, standing and walking . I also am restricted to lifting only 25lbs. I know this is all probably a lot of gibberish but if anyone understands I need some ideas, suggestions and really just to be able to talk it through and figure something out. I currently do private duty which I hate. I love my client and her family it's just that I work 3rd and having no co-workers is very lonely and isolating for me. Plus I would like to be a bit more active than is required with my current job. Any thoughts would be appreciated. Thanks for reading.
