Insured RN Suffering from Incurable Disease

Nurses Activism

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RN Suffering from Incurable Disease Fails to Keep Up With Medical Expenses Even Though She's Insured

Pays $14,000 a year out of pocket

"After being an emergency room nurse for 17 years, I became too ill to work," said Jan Stephens, an RN from Anaheim, Calif. "It all started out manageable enough. In 1992, I enrolled in a Blue Cross policy with a monthly premium of $282, a $500 annual deductible, and a $250 prescription drug deductible.

"Then in 1995, I was diagnosed with an incurable bladder disease called interstitial cystitis and several other coexisting illnesses. I was disabled due to the excruciating pain and, like so many other people who become sick and can't work, I had to live on a fixed income. Problem was, my insurance costs kept going up. Now, my monthly insurance premiums are $639, with an annual deductible of $1,500, and I pay up to $500 per month out of pocket for prescription drugs.

"As just one example, the copayment for Elmiron, the only medicine specifically for treating interstitial cystitis, zoomed from $25 a month in 1999 for 200 capsules to $250 a month now for 180 capsules. Blue Cross will not cover the syringes, needles, urinary catheter, Lidocaine, or sodium bicarbonate that I need to administer the cocktail of medicines I use.

"I truly do not know how much longer I will be able to keep my home that I've lived in for the last 30 years. In saying all that I've said, I do realize that there are many people who are much worse off. While I am not terminally ill, my quality of life suffers immensely due to my illnesses and the financial strain that has resulted."

She tells her story here. Since she made this video here costs have increased.:

Specializes in Acute post op ortho.
I agree.

So much of the fault is placed on the 'evil' insurance company when a VERY large portion of it lies with the employer for choosing the plan and/or passing on the costs to their employees.

Also, people who are receiving disability usually also qualify for Medicare/Medicaid. I think there is far more to the posted story than is told.

Finally, I was wondering when someone was going to look past the surface. If she is truly disabled, as she claims, She'd be collecting LTD & medicaid. Paying BCBS? Why?

There's more to this story........

Specializes in Critical care, tele, Medical-Surgical.
Finally, I was wondering when someone was going to look past the surface. If she is truly disabled, as she claims, She'd be collecting LTD & medicaid. Paying BCBS? Why?

There's more to this story........

Medicaid (MediCal) is for people who are destitute.

She teaches piano.

She owns a nice home, a piano, and probably had disability insurance.

Maybe she has money in the bank or has invested.

Google the one of several diseases she has, interstitial cystitis. It is common for people to have severe pain and need to urinate 60 times a day.

Not conducive to working as a nurse.

She is brave to have made her situation public with her name and video.

I am sorry she is not believed.

Specializes in Acute post op ortho.

Ok...I just watched the you tube video link in the OP.

Is that a Steinway she's playing?

She's lived in her home for 30 years.....should be paid for by now, homes in her neighborhood go for an average of $360,000.00.

Specializes in Critical care, tele, Medical-Surgical.
Ok...I just watched the you tube video link in the OP.

Is that a Steinway she's playing?

She's lived in her home for 30 years.....should be paid for by now, homes in her neighborhood go for an average of $360,000.00.

I am flabbergasted that without even watching the video so many opinions were offered.

Specializes in Acute post op ortho.
I am flabbergasted that without even watching the video so many opinions were offered.

Why?

Her story doesn't add up.

Work in a hospital long enough & you can smell a lie a mile away.

Watch her eyes as she tells her story, watch her shift her gaze......there's more here than she's letting on.

Specializes in Critical care, tele, Medical-Surgical.
why?

her story doesn't add up.

work in a hospital long enough & you can smell a lie a mile away.

watch her eyes as she tells her story, watch her shift her gaze......there's more here than she's letting on.

i've only worked full time in hospitals since 1958 if you count volunteering as a candy striper.

it is sad to be so cynical. she is not asking for anything except for her insurance company to honor the original contract she signed when she chose the more expensive option offered by her hospital.

she paid for long term disability insurance for 17 years before she needed it. now that company is honoring their contract.

i have paid for it for 37 years and never needed it. now i could collect social security but am healthy and working. so my premiums help people less fortunate than i am. that is how it should be.

see if you work and pay off your home, put a son through college, and then get sick you have to be destitute to qualify for government help.

that makes sense. but once you are no longer able to work as a nurse because you need to catheterize yourself several times a day, urinate often, and suffer extreme pain, especially when tired.

once you are no longer part of your employer's plan the company can do as it chooses. so they raise rates, deductibles, and co-pays.

some in her situation would go on a cruise or otherwise spent all their savings and then let taxpayers support them.

all she wants is to be able to buy the medication that keeps her able to play music, teach students, and work some free lance piano jobs.

i believe her. she is not asking for anything except to regulate insurance companies. why not reform healthcare so people can be productive even with an expensive medical condition?

Specializes in Acute post op ortho.

How is reforming healthcare going to un-debilitate her?

I'm all for reform.

Sustainable reform.

I'm yet to see a bill that is sustainable. When one comes down the pike, I'll jump on the bandwagon.

[YOUTUBE]

[/YOUTUBE]
How is reforming healthcare going to un-debilitate her?

I'm all for reform.

Sustainable reform.

I'm yet to see a bill that is sustainable. When one comes down the pike, I'll jump on the bandwagon.

I think that is the only responsible thing I've read from you. I applaud you Ozoneranger!!!!

Now then, back to the comment made regarding socialism... forget calling health care reform socialist.

It's no more socialist than public schools, the police department, fire department, libraries, and any other agency you pay on your property tax bill, oh yes -lets not forget the streets outside our front doors and how terribly socialist they are.

I know, you say none of those agencies are self sufficient, they're full of pot holes, continually under funded...etc, etc. Yes, this is true, however - they work.

Rich or poor, intelligent or challenged, you make the call or enter the door and you are provided equal service. Period.

I think that is the only responsible thing I've read from you. I applaud you Ozoneranger!!!!

Now then, back to the comment made regarding socialism... forget calling health care reform socialist.

It's no more socialist than public schools, the police department, fire department, libraries, and any other agency you pay on your property tax bill, oh yes -lets not forget the streets outside our front doors and how terribly socialist they are.

I know, you say none of those agencies are self sufficient, they're full of pot holes, continually under funded...etc, etc. Yes, this is true, however - they work.

Rich or poor, intelligent or challenged, you make the call or enter the door and you are provided equal service. Period.

72% of the fire departments in this country are volunteer. Most of our public schools are the worst in the world. More and more people are home schooling or paying twice for school for their kids. We have one of the highest crime rates in the world. Police department. Yeah right.

Do you believe that 2 tylenol are good for a headache but 10 would be better. What about food. Why is Kraft allowed to make millions but an insurance company can't.

Did you know that it's the government that's limiting our access to insurance? Check out some sites on the internet and put in several states. In some states you have a choice of 3 or 4 comapanies in others you have a choice or 20-30.

It's not having insurance that matters. It's the cost of healthcare. Americans want the best. They aren't satisfied with middle of the ground. They want houses they can't afford, cars and trucks they don't need. Why does a guy who lives in a condo need a truck. What's he gonna haul in it? What service costs you less today than it did 10 years ago. I had a plumber at my house. $95/hr. Should a plumber make that much money. It was a family business so he kept all the money. Probably depricating his truck big time. But that's ok. Because many middle class people can be plumbers. Are you ready to take a cut in pay to pay for others... plus pay higher taxes? People need clothes. Should we subsidize that too? When is enough enough?

A liberal will give you the shirt of someone else's back.

Specializes in Acute post op ortho.
sources?

http://www.usfa.dhs.gov/statistics/departments/index.shtm

"87% of fire departments are volunteer or mostly volunteer and protect 38% of the population"

http://nces.ed.gov/ccd/pubs/npefs03/findings.asp

The median of the state per pupil expenditures was $7,574, indicating that one-half of all states educated students at a cost of less than $7,574 per student (derived from table 5). Three states-New Jersey ($12,568), New York ($11,961), and Connecticut ($11,057)-expended more than $11,000 per pupil. The District of Columbia, which comprises a single urban district, spent $11,847 per pupil. Only one state, Utah, had expenditures of less than $5,000 for each pupil in membership ($4,838).

http://www.hslda.org/docs/news/200908100.asp

Each year, the homeschool movement graduates at least 100,000 students. Due to the fact that both the United States government and homeschool advocates agree that homeschooling has been growing at around 7% per annum for the past decade, it is not surprising that homeschooling is gaining increased attention. Consequently, many people have been asking questions about homeschooling, usually with a focus on either the academic or social abilities of homeschool graduates.

The last piece of major research looking at homeschool academic achievement was completed in 1998 by Dr. Lawrence Rudner. Rudner, a professor at the ERIC Clearinghouse, which is part of the University of Maryland, surveyed over 20,000 homeschooled students. His study, titled Home Schooling Works, discovered that homeschoolers (on average) scored about 30 percentile points higher than the national average on standardized achievement tests.

http://www.nationmaster.com/graph/edu_sci_lit-education-scientific-literacy[/url]

# 1 Korea, South: 552

# 2 Japan: 550

# 3 Finland: 538

# 4 United Kingdom: 532

# 5 Canada: 529

= 6 Australia: 528

= 6 New Zealand: 528

# 8 Austria: 519

# 9 Ireland: 513

# 10 Sweden: 512

# 11 Czech Republic: 511

= 12 France: 500

= 12 Norway: 500

# 14 United States: 499

http://phx.corporate-ir.net/phoenix.zhtml?c=129070&p=irol-newsArticle&ID=1316651

"The investments we've made over the past three years are driving solid business momentum in a challenging economic environment," said Irene Rosenfeld, Chairman and CEO. "We're on track to deliver strong top- and bottom-line results, restore our profit margins to industry averages and consistently deliver against our long-term earnings growth target of 7 to 9 percent."

* Net revenues declined 5.9 percent to $10.2 billion, including the unfavorable impact of 8.1 percentage points from currency and 0.7 percentage points from divestitures.

http://www.signonsandiego.com/news/business/20080326-1409-kraft-executivecompensation.html

Kraft Foods CEO Rosenfeld earns $11.6 million in 2007 compensation

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