Hi Everyone,
I'm new to this group. I had a horrible experience with one of my patients. The male pt. had panc ca w/mets to liver/lung. Lived with spouse and adult sons stayed with them. It all started when he became dyphasic. The family were, like most, insistent on feeding him. I've never had a family not respond to teaching re: aspiration, etc. The family fed him anyway, i.e. chewing food for him and putting it in his mouth!! I finally taught til blue in the face and they stopped. Then When he started transitioning, they kept shaking him awake, begging him not to die! Of course, I did teaching re: peaceful environment, etc. to no avail. This is the worst death I've ever witnessed in all my years in hospice. I called the SW quite early in the process and bereavement and the family refused visits. Declined Chaplain. He had a horrible death and I felt like I was witnessing torture. Is there anything else I could have done for this patient? He did sign a DNR for me about a month prior and I constantly reinforced that "his wish is ..." Nothing worked!! For the first time, I feel like I failed a patient and family. Any suggestions or comments welcome. This has been haunting me.
Hugs,
HM