please pray for my daughter catie. she is getting worse by the day. i still am having trouble comming up with the funds to get her to az. where i would have a job and insurance. i awoke last night to her screaming in pain. she has dystonia of her neck muscles and her head was pulled all the way back to her neck, with the muscles in a spasm. i gave her what medication i could and applied heat, but we had to wait with her in agony until the meds kicked in. for those of you who don't know my daughter catie. she has survived 43 brain surgeries and well over 50 total surgeries in the last 11 years.she will be 16 in november of this year. she has spina bifida c3-t3 mylomenigocele, hydrocephalous, slit ventricle syndrome, a ventricle-pleural shunt, epilepsy, arnold chiari malformation type ii for which she has had a posterior fossa decompression (removal of a 1 in. wide strip of bone in the occipital area),dystonia of the neck muscles, mr, and dyslexia. she has respritory arrested twice, once at home in my arms. i could write a book about what she has survived. she is being granted a dream.her dream is to swim with the dolphins in orlando,fl. we are waiting to find out how soon she can go. they are rushing the trip as much as possible. i am afraid that she might not make it if they don't hurry. we have to drive since she can't fly, which is a good thing b/c we are going to be adopted into the ccai, and catie is thrilled about it she can't wait to meet chief thunderhawk and recive her indian name. we can drive the 4 hours or so to ohio, stay the night after the ceremony and the i can drive the 14 hours to orlando from there. this way all of her dreams can come true. she needs to see the neurosurgeon in az. he is the top pediatric neurosurgeon in the country. i am not sure she will make it. there are no groups to help send her there, the only way is for me to take a travel nurse position. that way she will have insurance. she has been visited in her dreams several times by my deceased grandmother asking her if she was ready to go to heaven or if she wants to continue to stay with us in pain. she came again last night to her after she finally relaxed and was able to sleep. some of you may not believe that this can happen or does, but we believe her. she has told me about deceased ancestors that she never knew. at any rate she is very sick and close to dying. please say a prayer that she at least gets her dreams. also please pray for peace for her, and for god or the great spirit to ease her suffering. sorry this post is so long. thank you in advance for your prayers.
