Can I just say that from personal experience...

Published

Stevens-Johnson Syndrome is about the most painful thing I have ever experienced!

I had posted about having a reaction to cardizem about...2 and a half, three weeks ago. Well the rash progressed to SJS, which landed me in the hospital for 10 days. I lost over 30 percent of exposed skin...I don't remember the first three days of being in the hospital. I remember being life flighted from the hospital that I work at and I remember getting to University of Cincinnati hospital and going their burn ICU and getting my back cleaned and the incredible amount of pain that went with that.

Let me tell you, the nursing staff at UC was WONDERFUL. I didn't have a bad nurse in the bunch!

I am still peeling skin wise. My hands and legs still...most of my open areas are healed up.

It was the worst experience in my life.

It is horrible that you had to go through this. Last year, my grandmother got TEN, which is like SJS. She ended up passing away because of infection. It is the most horrible thing I have ever seen. I am glad that you were strong enough to pull through and are on the mend. I know what you are going through. My prayers are with you.

Specializes in M/S, MICU, CVICU, SICU, ER, Trauma, NICU.

Good luck to you and please speak with someone about PTSD....take care of yourself and am glad to know that you had great caregivers.

J

Stevens-Johnson Syndrome is about the most painful thing I have ever experienced!

I had posted about having a reaction to cardizem about...2 and a half, three weeks ago. Well the rash progressed to SJS, which landed me in the hospital for 10 days. I lost over 30 percent of exposed skin...I don't remember the first three days of being in the hospital. I remember being life flighted from the hospital that I work at and I remember getting to University of Cincinnati hospital and going their burn ICU and getting my back cleaned and the incredible amount of pain that went with that.

Let me tell you, the nursing staff at UC was WONDERFUL. I didn't have a bad nurse in the bunch!

I am still peeling skin wise. My hands and legs still...most of my open areas are healed up.

It was the worst experience in my life.

oH, THAT'S AWFUL. :hug:

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