Anyone know what ANGILNEYNOTICENEMA is?

[unikuelady, RN]

My daughter just phoned me and said this is what she has been diagnosed with. It pertains to a blood test that had to be frozen and spun. The doctor told her it is very rare and causes her tongue and mouth to swell-and to carry an EPI-PEN. She's had many sinus/allergy problems..so I'm assuming it has something to do with that. I've tried doing a search on this and have come up empty. The spelling could be off. She said the doctor didn't know much about it. She said he came across this special test and as a last resort had it done. She has had several anaphylatic episodes this past year, not able to figure out what the trigger is. Any info would be helpful. Thank You :)

[goodknight]

Well I found angioedema which is swelling of mucous membranes or other stuff and is associated with hives. Can cause respiratory distress when present in mouth, pharynx, or larynx. type I hypersensitivity reaction. Caused by release of histamine by immuneoglobin E antibody in reaction to injesting an allergen.

AKA angioneurotic edema.

I have no idea if this is waht your talking about, kinda sounds like it, but I just looked it up in Taber's, so...

[thanatos]

This sounds like hereditary angioedema (HAE) which results from a deficiency of C-1 esterase inhibitor. Here is a link on the disorder and the blood test:

http://www.hereditaryangioedema.com/

http://www.labcorp.com/datasets/labcorp/html/chapter/mono/sc003000.htm

Hope that helps

[oramar]

This sounds like hereditary angioedema (HAE) which results from a deficiency of C-1 esterase inhibitor. Here is a link on the disorder and the blood test:

http://www.hereditaryangioedema.com/

http://www.labcorp.com/datasets/labcorp/html/chapter/mono/sc003000.htm

Hope that helps

Can't help but wonder how it will be treated. Thanks for the info.

[Pattiecake]

My daughter just phoned me and said this is what she has been diagnosed with. It pertains to a blood test that had to be frozen and spun. The doctor told her it is very rare and causes her tongue and mouth to swell-and to carry an EPI-PEN. She's had many sinus/allergy problems..so I'm assuming it has something to do with that. I've tried doing a search on this and have come up empty. The spelling could be off. She said the doctor didn't know much about it. She said he came across this special test and as a last resort had it done. She has had several anaphylatic episodes this past year, not able to figure out what the trigger is. Any info would be helpful. Thank You :)

I think you may be describing angioedema. I have taken care of 5 patients with this. They are always on antihistamines and carry an epipen.

Pat

[stbernardclub]

very interesting...i have a pt now with unexplained severe hives that the dr is blowing off, even though she said her throat feels funny...but, as far as i know, she has not had any abdominal pain...i got her prednisone, im going to call the facility where she is to check on her..:)

[unikuelady, RN]

Thanatos, thank you very much for the information. My daughter call me back and said it is ANGIONEUROTIC EDEMA. Her C1-INH was very low. I went to the HAE site and the description matches her exactly. It also explaines the abdominal problems that she has been having for years, (bloating, N/V).

Thank You all for your answers. This is nursing website is the best thing that has happened to me since graduating nursing school.

[Salty1]

Thanatos, thank you very much for the information. My daughter call me back and said it is ANGIONEUROTIC EDEMA. Her C1-INH was very low. I went to the HAE site and the description matches her exactly. It also explaines the abdominal problems that she has been having for years, (bloating, N/V).

Thank You all for your answers. This is nursing website is the best thing that has happened to me since graduating nursing school.

The term angioneurotic edema is something of a misnomer and has nothing to do with neurosis and for that reason was supposed to be corrected in the literature and medical dictionaries as angioedema. Some old terminology is difficult to eradicate and continues to persist.

[NRSKarenRN, BSN, RN]

Thanks for the refresher about this condition and great webste links.

[zacarias, ASN, RN]

I just had a patient that came in with angioedema in the face. Guess what med she had just started on prior? Lisinopril!! That's one of the nasty, rorifice side effects of ACE inhibitors.

[St.rein]

It's nice to see people helping other people...especially NURSES..That's why I look up to you Guys .