Any of you ever care for a pediatric celiac disease pt? Need your help

[vintagestudent]

Hi,

Our peds instructor wants us to come up with nursing interventions for a pediatric patient with celiac disease. No specific age is given. I have never been assigned a pt with this condition, much less a ped pt. (Our peds rotation doesn't start for another month.) I also can't find any nursing interventions in my textbooks. The only ones that I can think of have to do with monitoring for possible skin irritation caused by chronic diarrhea, fall risk interventions, admin pain meds per physician's order (I assume they're cramping and in possibly severe pain). Am I on the right track? My brain goes blank after this.

Perhaps you've taken care of a young patient with this disease and can help me. I'd certainly appreciate it.

Thank you. :flwrhrts:

[soccerfan12]

http://neurotalk.psychcentral.com/thread1872.html

this should be a link to "the gluten file"......lots of info.......and soccor fan.....with a parent with celiac disease, you should never have been dx something else without doing the gene testing......and for the tests to come back positive, the villi have to be in pretty poor shape.....you may well have suffered consequences you are yet to find out about....certainly malabsorbtion didnt help you to grow in a normal fashion.....and dont forget the RYE

Thanks for that link. I was never sure why they didn't just stick me on a gf diet even though my tests were coming back positive. It is a hard disease to diagnoise apparently. Even though my mom has it and her mother they didn't think I could have it. It took 3 years for the test to finally be positive and by then my intestines were severly inflammed. Thankfully the intestines are good at healing themselves but my gi said it was the worst inflammed intestines he has ever seen. It took a good 6 months before I was able to go back to school (the school loved that lol, some teachers were more helpful than others, I ended up doing work from home) and I still didn't feel 100%. 3 years later I feel better, but its still a struggle. I really wish there was some kind of pill (apparently the dutch are working on something) to fix it, it would make everything a lot easier and less expensive thats for sure. Thanks again.

[morte, LPN, LVN]

Thanks for that link. I was never sure why they didn't just stick me on a gf diet even though my tests were coming back positive. It is a hard disease to diagnoise apparently. Even though my mom has it and her mother they didn't think I could have it. It took 3 years for the test to finally be positive and by then my intestines were severly inflammed. Thankfully the intestines are good at healing themselves but my gi said it was the worst inflammed intestines he has ever seen. It took a good 6 months before I was able to go back to school (the school loved that lol, some teachers were more helpful than others, I ended up doing work from home) and I still didn't feel 100%. 3 years later I feel better, but its still a struggle. I really wish there was some kind of pill (apparently the dutch are working on something) to fix it, it would make everything a lot easier and less expensive thats for sure. Thanks again.

geesh, this is a GENETIC disease!! you have two relatives with it, and somehow YOU cant???? your siblings should have the gene testing done.....it could be they have the gene and have yet to have it "activated"....good luck

the markers in the lab work will take several years to attain "+" status...and as i said prev. that occurs when the villi are about shot......WHY in heavens name should any patient suffer this way????