Hello all from the confused daughter of a patient. My mom has been on Jevity for 8 years now, fed through a drip all night long, peg site. For years she hooked herself up at night at bedtime etc etc.
Now she is in a nursing home. She likes them to start her feeding at 9pm so that she can be finished at about 8am. But sometimes the nurses don't get to her until 11pm or midnight so the feeding time throws off her whole morning.
Since my mom and I are experienced with her feeding machine etc (we had to show the nurses how it works)....if I'm at the hospital I was turning on her machine for her at night. (She can't reach it herself). Now the nurses tell me that Jevity is considered medicine and I am not allowed to do this for her.
I don't want to be Miss Unco-operative Patient but I don't know the reasoning behind this. If Mavis next door can feed her husband his applesauce, I don't know why I can't get my mom her Jevity. And I'm wondering, if my mom could reach the on switch herself, would they allow HER to turn on her machine at night? She can't wait until 11pm for them to feed her, that's way too late. She rings her call button around 9:15pm if they haven't hooked her up but they don't answer until 10pm....the CNA who answers doesn't know how to turn on the machine and gets a nurse...it takes way too long.
Any words of wisdom are appreciated.