Thanks for the quick Ipod reply. I understand what you are saying about "don't touch my pump" but actually it's MY pump. LOL. We had to lug it from home because the nurses didn't know how to use the one in the room. Well, a couple of nurses did but most just spend an hour trying to figure it out and then left. Some nights she didn't get fed at all. So they actually agreed that we should bring our own pump from home. Oh, and we had to bring our own jugs of Jevity as well. Usually they didn't have the right size and gave her less than what the doctor ordered by about 30%. Other nights they just plum had none AT ALL. I had to chuckle when you said to talk to the director of nursing, her reply about the nurses who couldn't work the pump was "OH, that was not one of our nurses!" Right, it's a temp nurse from an agency, but you know what, she might not be one of "your nurses" but SHE IS ONE OF MY MOTHER'S NURSES! FEED MY DAMN MOTHER! I WROTE THE INSTRUCTIONS OUT FOR YOU and taped them to the wall, WHAT THE HELL IS THE PROBLEM HERE?????
Sorry to vent but you have no idea......yesterday she got somebody elses meds. Last week she woke up in a big puccle of Jevity, none of the food had gone in all night. I could go on and on....it's gotten so that my sister or I have to be there around the clock, but my sister is almost 2 hours away. God bless her she comes often.
Believe me I watch the nurses and the assistants and I would not want to / could not do their jobs. I understand....overworked, understaffed....the whole nine yards. And you are probably saying "girl...you have no idea!...." , but like I said, it's my MOTHER! I'm going to lose my job because i am so worn out and it's not fair. I don't mind spending 4 hours a day there, I don't mind paying someone to be there with her for as many hours as I can afford, but I cannot be there from 7am to 9am, then go to work, go there at lunchtime and have her begging me to stay longer, then go back at 5:30pm until 9:30pm and all weekend. Plus all the medicare paperwork and the insurance forms, I'm at the end of my rope. I've done it for weeks. WHY CAN'T THEY JUST LEARN HOW TO FEED HER????
So, I thought we could make it easy for them. I'd turn on her machine, like we did for six years, and sleep easy knowing that she was going to be okay that night, not wake up in a panic because she's getting dehydrated again. You're probably thinking "You need to find another place for her". Well the closest one is 22 miles and how am I going to make it back and forth 14 miles to work then 22 miles in the other direction to this supposedly-better facility?
Anyway, just wanted to make it a little clearer why I wanted to give my mom her Jevity. It's not that I'm what you probably call a meddler. I am going to try to hire a private nurse to come in just for 90 minutes on as many nights as possible or that I can afford, and make sure that she is well versed in everything my mom needs. I am assuming they would allow this, even though she is not a nurse on staff? I'll have to check further.
I have taken good care of her for 8 years since her stroke and I thought that now the nursing staff could take over some of the burden. But apparently the regular staff is not around much at night and its all temps. And the reason I can't care for her at home is mobility and transfer issues as well as other things I won't get into here. Thanks for listening I just needed to vent before I can sleep!