Did You Know?
allnurses is the largest community for nurses on the web. We now have over 388,598 members! Join today to network with other nurses, laugh, share, and much more.
| No. 10 |
Dec 26, 2000, 12:21 AM
Oh yes, you are so right; I can't fix her! I saw the results of the latest CT scan! However, today when I called, I found out that when she woke up this morning, there was glorious yellow urine draining from that left kidney! I do not know what the problem was, but for today anyhow, she awoke with this great Christmas present; and for that, I am grateful. She has a new grandchild due any time, and she would so like to be alive to enjoy the baby a while. My other sister and I are trying to prepare for the worst, whatever that is and whenever it DOES happen, but then when a crisis occurs, if there IS something simple to be done, it's hard NOT to respond, because her fear is so great! Nothing heroic, and she started to talk about dialysis, if those kidneys do shut down! I certainly do NOT think that would be a good idea! Hopefully, Hospice can help her see that even if this was possible, it would just prolong her agony, waiting for the next and then the next crisis. Do you happen to know how these patients usually go? Hospice thought most likely kidney failure, but I have very little experience with these patients. Thank you for your post, and I hope everyone DID have a great Christmas, because my sisters and I did | | Advertisement Sponsored Links | | | | No. 11 |
Dec 26, 2000, 12:38 AM
Dearest PPL: It doesn't sound good, honey. From my own experience of looking back and wishing I had done things differently, I would say to you put everything else aside that you possibly can and go be with your sister. You really can't fix her. Just be with her. Let her talk. Really listen. Talk about all the things you love about her. It will give her comfort to know you're there for her. I know you're frustrated and even angry, but this is her process, and what she needs right now is your love and support as her sister. Give her your permission to die if that's possible. Let her feel your caring. It sounds as if there are many prayers with you today, mine as well. You are not alone.
| | No. 12 |
Dec 27, 2000, 12:05 AM
DEAR SISTER, I AM SO SORRY ABOUT WHAT YOU ARE GOING THROUGH WITH YOUR SISTER. I HAVE WORKED AS A HOSPICE AND PALLITIVE NURSE FOR THE PAST YEAR, AND I WAS CONCERNED WHEN YOU MENTIONED THAT THE HOSPICE NURSE TRIED TO TALK YOUR BROTHER THROUGH IRRIGATION OF THE LEFT NEPHR. TUBE, UNSUCCESSFULLY. MOST HOSPICE NURSES AT THAT POINT WOULD GO OUT, REGARDLESS OF THE TIME, AND VISIT THAT FAMILY AND PROVIDE WHATEVER NURSING CARE IS NEEDED, WHETHER SUPPORT, HANDS ON AND/OR
TEACHING. IT MUST BE TERRIBLE FOR YOU AS A NURSE TO BE IN THIS POSITION. I URGE YOU TO BE A SISTER, AND ALLOW YOURSELF THE LUXURY OF FORGETTING YOU ARE A NURSE. ASK, OR DEMAND, WHATEVER NURSING SUPPORT IS NEEDED FROM THE ORGANIZATION YOU ARE RECEIVING CARE FROM FOR YOUR SISTER, AND ALLOW YOURSELF TO JUST BE HER SISTER, WITHOUT THE PRESSURE OF HAVING ALL THE OTHER ANSWERS. GOD BLESS. R.
| | No. 13 |
Dec 27, 2000, 12:38 AM
I know, I was surprised too! He's a trooper though and has been elevated to saintly status! Anyway, the tube is draining for now, so we shall see what happens next. I'm planning a visit after the New Year. She lives with my other sister and her husband, who we call "Mission Man" as he's always being sent out on little missions and/or coming up with ways to make my sister's days easier; some of them quite creative! I have tried to distance myself, since I am a nurse and let the other nurses take over; easier said then done, for sure! Since you work in Hospice, can you tell me how the end might come, as far as any experience with this type of cancer? Thank you all for your posts!
| | No. 14 |
Dec 27, 2000, 11:43 AM
PPL,
It has been a long time since you wrote that first post. I have not responded because I really have no knowledge that can help you. But I just wanted you to know that I have been following your posts and am wishing the best for you and your sister. Just wanted you to know that I did not forget you.
Cancer is a big problem in my family. My uncle was just recently told he had the green light after his second fight with Lung CA, and now I have an Aunt that is recieving radiation tx due to a malignancy they recently found in one of her lymph nodes, and my cousin with breast CA is still refusing tx. Both of my grandfathers died from CA, and it feels sometimes like I am just waiting for the next diagnosis. Who's next?
You are a strong and wonderful sister, your sister is very lucky to have you. Keep us posted on your sisters condition. Good luck during this trying time.
Jill
| | No. 15 |
Dec 27, 2000, 05:05 PM
Originally posted by PPL: I know, I was surprised too! He's a trooper though and has been elevated to saintly status! Anyway, the tube is draining for now, so we shall see what happens next. I'm planning a visit after the New Year. She lives with my other sister and her husband, who we call "Mission Man" as he's always being sent out on little missions and/or coming up with ways to make my sister's days easier; some of them quite creative! I have tried to distance myself, since I am a nurse and let the other nurses take over; easier said then done, for sure! Since you work in Hospice, can you tell me how the end might come, as far as any experience with this type of cancer? Thank you all for your posts!
I have been thinking of you and your family and wondering how things are going...it sounds like kidney failure will probably be the way your sister will leave -I am sure you know that this is not a painful process..however any kind of complication could occur and you may never really know the whole story-this took me a long time to come to terms with when it was happening to my father and mother.No autopsies were done and now I try not to think about the whys and how but instead focus on how close we were during the last months.We worked hard so that my mom could die at home in her own room-where she most wanted to be...The only regret I have is that I feel that her pain could have been better controlled at the end-we met with some resistance with a particular hospice nurse who was not anxious to come out to the house in the night and star a morphine drip.I should have been more demanding at the time-but s/l roxanol held her til the next day when another nurse was able to start a subq infusion...she died the next morning.Every hospice has different policies but sometimes we must be strong advocates... | | No. 16 |
Dec 28, 2000, 01:18 AM
Hi everyone, and thanks so much for posting. We have ovarian, breast, colon, prostate cancer in our family. Not too good, but my sis was in the lowest risk group for ovarian, so go figure. She has been having excruciating rectal, stabbing like spasms, and has to evacuate herself manually for the most part, as there is bowel encased in tumor, partial bowel obstruction, etc. But today she's doing better, as they have increased her Duragesic, and also has Dilaudid, and Percocet, I believe for breakthrough pain. Also, they gave her a topical anesthetic oint too, which has helped. I have to say, they've been really good about getting her the pain relief that she needs; they are not shy about that. She emailed me about her Christmas gifts she received, and the ones she gave, which especially gave her pleasure. She is profoundly deaf, and of course unable to work since is so ill, and receives a little disability check. Of course, she should not be spending money on ANYONE, but you know, that is the thing that has really lifted her spirits, plus the things she received; mostly comfort products and also tells me about visits from different ones. She's waiting for that new grandchild too! Jill, is your cousin's ca contained to the breast or mets? How is she doing? I'm happy that my sis'd kids are grown. It would really be awful to have younger children, like your cousin, and then choose NOT to fight anymore. Well, goodnight all and thanks for being there!
| | No. 17 |
Dec 28, 2000, 07:03 PM
PPL,
I am glad your sister had a good christmas, I know I get more pleasure out of giving presents than getting anything. If this gives her pleasure, then good for her.
As far as I know my cousins CA has not metastisized yet, but I am not sure she would tell me if it had. She told me last night that one of the reasons that she is not getting tx right now is that she just wants to be a mom to her kids and not sick all of the time. She has lost so much time with her children due to illness that I think she just wants what is left of the time with them to be normal (if there is such a thing).
She is also HIV positive thanks to her drug addict x-husband (you just never know when you get married what people are really like soemtimes). She takes so many meds that it is hard to have a normal life as it is. I think she has given up hope to tell you the truth. She has other medical problems on top of all of that.
I know I have to respect her decision, but it is so hard to do. She has really been a great friend to me all of my life and I will miss her tremndously. I am in WI and she is in AZ and I don't even know if I will ever see her again. I would love to take the time off work to go out there, but I am really trying to save the time for when she gets really sick. We were able to spend some time together last summer and that was great.
Anyway, enough about my family.
Please keep us posted on your sister.
Jill | | No. 18 |
Dec 29, 2000, 12:09 AM
WOW! Your poor cousin DOES sound like she's on a sinking ship! Still, I think of the relatively long periods of time that my sis had good health between treatments, and after a course of chemo was over and done with, a three year long remission, the first time; it's really hard NOT to want them to fight, but of course, I don't mean now, as she has too much mets. I can't imagine what it would be like to take chemo along with the drugs for HIV; that WOULD be frightening! Also, my sis had two misread CT scans during approx a year-year and a half long period, which did NOTHING to help her situation, so things that might have been acted on, weren't, until things got out of hand. And so it goes in our less than perfect world! Thanks all and Happy New Year! I worked and helped to bring in Y2K last year, and now, I'll be working to ring in this New Year too!
| | No. 19 |
Dec 29, 2000, 05:01 PM
Hi. Thanks so much for posting. There has been some talk about a pump, but it seems from your post, that should be the last resort, correct, because then they're teathered to a pole? I know she has quite a bit of nausea and takes Reglan for that, but she's still swallowing and eating. She has mets up by her diaphragm, indenting her liver, plus in other places within the peritoneal and pelvic areas. It DOES help to know about the different forms of pain relief available for her. Thanks | | 386 members
3,449 guests 3,835 | 17 | | | 0 | | | 2 | | | 7 | | | 14 | | | 2 | | | 12 | | | 63 | | | 12 | | | 10 | | | 39 | | | 1 | | | 13 | | | 2 | | | 9 | | | 17 | | | 11 | | | 16 | | | 16 | | | 38 | | | 14 | | | 20 | | | 23 | | | 19 | | | 24 | | |
Nursing News