Phew - thank you so much for replying!! I know this probably sounds odd, but I honestly just don't know anyone else in my local life who has any idea what it might be like!
Right now, I'm feeling okay with double steroids... but I'm a total planner. I have to figure out all my options months in advance... it's just my personality. So this is killing me almost as much as the health stuff is!! I am going to try and work my next three shifts, but I am just having nightmares that of course, it will be an infant code and my hands won't work. But they will. They'll have to. Then I'll play it by ear after the prednisone. Whatever it meant to be, I guess.
I'm so sorry for what you're going through!! I have typical inflamm. arthritis but also systemic involvement, so probably a few similar things. But sarcoidosis must be especially scary because of the incredible uncertainty.
I am surprised you are having trouble finding a job - I was actually thinking that maybe going back to psyc would be better physically. Don't get me wrong - floor nursing isn't "harder" just different. But maybe that was truer 10+ years ago! I know around here, almost every facility except places like charter are all closing up!
Honestly - thank you again for sharing your story. I think nursing is such a part of my identity that not only do my hands and feet feel like they aren't mine any more, but my job isn't either. Hearing you say that made me feel like I belonged again!!
Hope you are well,