Hi all! I was diagnosed with lupus this last summer and have since been started on immunosuppressants and steroids. Therefore I get sick every time I turn around. Any other nurses out there that are suffering from lupus. If so any tips for working with this disease!?!?
I am nurse that has been diagnosis with lupus and RA. I was diagnosis in 2009. I am on methotrexate,plaquenil,gabapentin,lortab, zanaflex, folic acid and I get infused monthly with Benlysta. Since I been diagnosis I have miss so many days from work. I work on Med-Surg floor. I been on Medical Leave for year now. I do not want to give my job up because I love nursing. I know it may be best for my health.Med-Surg floor is very stressful and busy. Lupus does not tolerate stress and worry. I always have flare ups. I want to do telephonic nursing or case management. I have found that it is very hard to transition to case management without my BSN. I am 46 years. I only know nursing. I have been a nurse for 22 years.
Last edit by mdavisRN on Sep 22, '13
Just a warning, if you suspect Lupus or any auto-immune disorder, run, don't walk to a rheumatologist!!! In 1997 I noticed I could no longer throw a basketball as high as a hoop. Far too many visits to internal med, then ortho, then neuros when I could no longer walk. Some "I don't knows" (I respect them) some wrong dx's, some outright dangerously wrong dx's. Finally in 2010 I got to a rheumy who diagnosed me in under 5 minutes (polymyositis).
Immune system attacking muscles.
By the time you notice weakness with poly, (1997, remember?) you've already lost 50% muscle mass! I continued losing muscle till 2010, 13 years!, and now at 61 I wont be growing much new muscle. I'm permanently disabled, live on Vicodin, Humira, methotrexate, and sometimes roids.
The immune system isn't studied in depth in medical school. It's left for those that go on to a rheumatology internship. Despite elevated cpk and ANA, I tested neg for lupus, then the docs would give up. My rheumy diagnosed by history and brief physical exam alone!
I hope this helps others avoid similar medical mis adventures and suffering.
Last edit by dthfytr on Jul 20, '14
: Reason: It's not always lupus!!!!!!!!!!!!!