I still work 40+ hours a week. It's hard tho and A lot of the time I literally come straight home and go to bed. As far as meds go I was doing prednisone, plaquenil, imuran, flexeril and tramadol. She recently added Voltarin and robaxin. It seems to be helping. I also wear a mask to work to try to prevent infection. I did get off the med-surg floor I worked on for five years. I now work in the outpatient infusion area. Mostly dealing with cancer patients and people with lupus, chrons (sp) and MS. So thankfully I don't have a lot of contact with the infectious. I am lucky that I don't have problems with the lights at least yet. But do suffer from headaches frequently due to inflammation in my jaw. How long after you were diagnosed did you have to quit your job!?