The Patient I Failed

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent. Nurses Relations Article

She knew what she wanted.

She'd watched her husband of 52 years die on a vent, and followed his wishes to remain a full code. But she knew that was not what she wanted for herself.

So, she wrote a Living Will, had it notarized, gave it to her personal physician, told all her friends and family what she did not want. She wasn't eligible for a DNR, as she was a healthy 89-year-old, but she knew what she wanted.

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"I do not wish my heart to be restarted through usage of any chemical, mechanical or physical intervention..."

Of her 6 children, one fought against her mother's decision, and it was this child, this one desenting voice, who found her mother collapsed on the kitchen floor.

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"I do not want any external device to be used to maintain my respiration if my body is incapable of sustaining it on its own."

The daughter told EMS her mother was a full code, and they intubated her on the floor of her kitchen. Once at the ER, her heart stopped, CPR was performed, and her heart was shocked back into a beat. Under the hands of those trying to follow the daughter's wishes, the woman's ribs cracked and broke.

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"I wish to die a peaceful, natural death."

She was then sent to ICU, where her heart tried to stop 3 more times. Each time, the broken ribs jabbed and ripped into the fragile muscle and skin as CPR was performed. Electricity coursed across her body and her frail heart was restarted a 4th time. By this time, the other children were there, but the act had been done, over and over. No DNR was written, and the Living Will fluttered impotently at the front of the chart.

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"I do not wish artificial means of nutrition to be used, such as nasogastric tubes or a PEG tube."

Her swallowing ability was lost in the storm in her brain that had left her with no voice, no sight, no movement. A scan showed she still had brain activity; she was aware of what was being done to her. Including the PEG tube sank down into her stomach, and the trach in her throat.

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"I wish nature to take its course, with only medication to prevent pain and suffering."

The daughter who wanted the mother to remain a full code also refused to allow narcotics to be given, stating she did not want her mother sedated, since she would "wake up" when the correct medical procedures were performed. Her nurses begged the doctor to write a DNR, and he said, "the family can't get it together, and I'm not getting into the middle of it."

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"Allow me the dignity we give to beloved pets. Let me die in peace."

I met her one Tuesday night, and spent that night pouring Jevity into her tube, only to suction it back out. Her legs were cool and mottled, her bowel sounds were non-existent, and her blue eyes stared blindly at a ceiling she could no longer see. The MD refused to terminate feedings, but I held them since there was no digestion taking place. The woman was turned and repositioned every 2 hours, and each time, she moaned and gurgled as her lungs slowly filled with fluid. I whispered my apologies as I did the very things to her she tried so hard to prevent.

Suctioning improved her lung function, but would make her body tremble. Over the next 2 nights, she slowly died, all while the daughter demanded more interventions, and maintained that her mother wanted to be a full code. We had read the Living Will. We knew better.

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"Thank you in advance for helping me in the last moments of my life to have a gentle, peaceful passing."

She had another stroke, and went back to the ICU, where she was coded until there was not enough surviving heart tissue to maintain a beat. Finally her heart was broken.

And so was mine.

The-Patient-I-Failed.pdf

Specializes in CV Surgical, ICU.

Absolutely heartbreaking.. and working in LTC, it hits so close to home..

and these are the same people (the daughter) who will then sue you, the doctor, the hospital and anyone else they can think of for "killing" their mother!

Unfortunately I see this all the time....for me it is the most frustrating part of being a nurse. I, too, have whispered my apologies to patients that clearly deserved to die in a dignified, peaceful manner, with their family members respecting their wishes. Unfortunately, some family members serve their own selfishness instead of their loved ones wishes. Hugs and thank you for sharing.

Specializes in med/surg, TELE,CM, clinica[ documentation.

Beautifully written and this happens more often than it should. And yes , this is the type of family that will "sue". The poor patient, when my parents became too ill to have a meaningful quality of life we followed their wishes and their . "living Wills'.

We had this same scenario on the Neuro Unit where I work, only it was a son. It was so heartbreaking to us nurses and he was so disconnected with the reality of the situation. I have always had an ethical issue with how this happens. Its so sad to see and have to be a part of this.

I hope you realize that you did help her die with what dignity you could. It is a shame her daughter put her through this, and a shame that the doctors did nothing to prevent her suffering. I hope that you realize that just by telling her sorry for what you had to do to her that it showed her what a wonderful nurse you are.

Beautiful story. and a reality I deal with daily. LTC, family dynamics, staff opinions, dr's opinions, loved ones inability to let go...very stressful. Yet I get something else out of it. I do what I can do, and do it THE BEST i can do it...and pray for Gods strength to do it even though it may not be what he or I would want. My heart is comforted knowing HE will ask the questions, if they need be asked, HE will have the final say, if there's a "say" to be had...Leave it all in his glorious wisdom, for only HE will handle it as necessary. God Bless all the awesome nurses out there, for it is WE, who these folks really need and appreciate in their final hours! S. Kinsey LPN LTC/Private Duty

Specializes in MICU.

Why do families do this to their loved ones...why? It breaks my heart every time I see this happen.

Bless you for writing this:nurse: I'm currently trying to pro-actively (legally) prevent a similar experience for my 88-y.o. mother. I have a brother who has other ideas. Sending an e-hug to you :sarcastic:

So beautifully written - and yes, I too am wiping tears from my eyes. I too have had to deal with patients/family members in this almost same story. I do not know why family members feel the need to prolong life when it is obvious their loved one(s) don't want this, and when everyone can see that it is only prolonging the inevitable.

i feel like i could have written this...this is my job. eventually i will transfer to hospice nursing so that i can honor people's wishes instead of forcing them to suffer. :/

Nursing has always meant providing care for the ill, providing all the comfort and care that I could possibly give. Many times I have seen family members demand repeated, tests/surgeries/procedures/meds/treatments, when the only thing that truly was required for their loved one was, peace, respect and a gentle touch. This poor soul knew what she wanted, had even taken time to write all that down. This family member only knew what they wanted/needed, never giving a thought to their mother and what she wanted. How is it that the Doctor could not step up and be an advocate for this woman. Scared to get sued?? Yes, probably. But he failed miserably in providing professional and compassionate care for this woman. He failed to respect her and honor her as a beautiful woman and honor her in death . I have seen Doctors that run away from a situation this and those that step up and advocate for the wishes of the person that lays in the bed, who doesn't want all the meds/procedures/tests/tube feedings/cpr/ICU/intubation.....Yes the family member was so self absorbed and didn't look beyond their nose to see their mother and what SHE wanted. I weep for this beautiful woman. And pray that she is at rest/peace now. I wonder if the family member is satisfied with what she has done, and I wonder if that MD can look in the mirror and not cringe, Death will take us all. We can not stop it, it's how we honor a person's death, that shows respect for their life. I have seen both sides of this story and I have been the one to pull the plug and say enough is enough while inside I cried and hurt for the loss of my loved one. But I know I did what they wanted, what was needed to be done, and I know one day when I face them again in the everafter they will say Thank You. Thank you nurse for caring. Thank you for your heart.