jlynnlee71

jlynnlee71

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About jlynnlee71

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  1. Aicardi Syndrome

    Thank you all for the replies! I've forwarded all the information on to my friend as its come up. She spends a lot of time doing her own research, but I know she's saved everything I've sent to her. Well, they finally went home, again. Her baby is...
  2. Aicardi Syndrome

    I did see how rare it was, and the cases I've read about don't have the happiest endings. Right now the baby has been seizing 5 to 10 times a day, and is on phenobarbital. Until she can see the specialist, there isn't anything more they can do for ...
  3. Aicardi Syndrome

    I have a question for the Pedi nurses. I'm a nursing student, and I just did my Pedi rotation last semester. My best friend had her second baby June 9, and last week the baby was diagnosed with Aicardi Syndrome, so she came to me for help looking u...