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MeBLady 601 Views

Joined: Dec 19, '03; Posts: 1 (0% Liked)

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    Hi :-)

    I stumbled across this thread browsing this forum, as my daughter is preparing to enter a Nursing program.

    My son was born with TM in 1987, never known anyone else that had dealt with this. Even his pediatrician at the time had only read about it in medical books, never seen a case. We had little support, and lived in fear that my son would die at any time.

    He was diagnosed through an ENT by physical examination. Bronchioscopy wasn't considered for the fear it would cut off the airway, though he was given a full work up to eliminate the possiblity of another associated disorder.

    My son had a moderate to severe case. He had loud "stridor", even when sleeping-- I remember being comforted at night when hearing the noise, because it assured me he was still breathing. He also had chest retraction the size of a half dollar as he inhaled.

    Complications included two bouts with pnemonia before he was a year old among the many secondary infections brought on by the constant fluid the TM caused in his ears/nose/throat. Tubes in the ears didn't stop recurrent ear infections. He was extremely difficult to feed resulting in poor weight gain, but always came around and ate enough just about the time his doctors were comtemplating a G-tube. Every common cold had to be monitored, and he was hospitalized for every respiratory infection.

    His case took longer than anticipated to go away, though it did go away without intervention. He was officially released from the ENT just prior to the age of 4.

    He is now 16 years of age and has a clean bill of health. Respiratory infections disappeared when the TM did -- he eerily developed an iron clad immune system to a point that he gets only a runny nose every couple of years. He has a slight indentation in his chest left over from the disorder that is hardly noticeable, and an innocent heart murmer that was detected at birth.

    He is still extremely underweight for his height (5'7, 110 lbs.), but is beginning to fill out more as he progresses toward adulthood. It was told to us at the time that his "failure to thrive" as an infant was unrelated to the TM (there is a family history of picky eaters/scrawny frames on both sides)....I never felt comfortable that this was the case, though it was a symptom that didn't leave with the TM.