Need help W/Difficult, complicated Pt.

Specialties Home Health

Published

i need some opinions on what to do with one of my home care pt's.

i'll give you a little hx. first.

female, mid 50's, lives alone,no willing family to assist. has chronic diagnoses but nothing that should seriously be disabling according to the multitude of md's who have treated over the years.

also has chronic pain issues,currently taking meds for same. mild depression/anxiety, controlled w/meds.

divorced, one child who lives out of state and doesn't really want to be bothered.

pt. has been on long term home care for about a year since coming out of ltc facility. when first admitted on our program, she was ambulating with walker and doing stairs. in the past year, she has slowly refused to get out of wheelchair (which she had to be used for longer distances) and is now completely w/c bound.

i'm at my wit's end. i and the md have talked and talked about all the problems she will face and some she has already had due to not ambulating,. she even sleeps in the chair. she has already had cellulitis and wounds on lower ext. due to edema, she won't elevate legs. this is a youngish woman who is sentencing herself to a life of never being able to walk again. we have pt in there again to try and help but i don't see the point. they can't stay on the case forever and she basically won't do the exercises on her own anyway.

btw, she has a foley , and wears a diaper for bm's because she refuses to get on a commode too.

should i just give up??? my supvr. of course is aware and obviously i can't make the pt. get up. i just feel really helpless and i guess a little angry. i have a paraplegic that would love the opportunity to have the ability to walk.. i have dealt with plenty of non compliance in my experience but this situation is so frustrating.

i would appreciate any suggestions or comments....

She does sound like a very sad woman. I also wonder if there isn't a bit of a control issue here. She doesn't seem like she can control much else around her so maybe whether she walks or doesn't is one thing she can control. She also gets a lot of negative attention which may be better than no attention at all.

Could you wheel and deal her a bit?! Look into a great center that has an activity that she loves and make it a goal for her to get there within the next month, etc. Maybe a fun goal would get her going again. And a little tough love never hurt anyone either. Good luck.

Specializes in rehab; med/surg; l&d; peds/home care.

Hi again

Well, she seems to be on adequate pain meds. I am currently on even more pain meds thanher, but I don't work and I have a ton of joint pain, back pain, and leg pain. I am in pain 24/7. But even with the amount of meds I'm on, my pain rating hovers around a 5 to 6 on a good hour. I'm surprised someone has her on that much medication without a definitive diagnosis. But they must know her somewhat? Doctors around here wont just give people those kinds of meds long term without being on hospice, or having a pain management consult. Whatever the case, I feel for someone who has to deal with pain. I really do. It can really bring someone down because you can't "fix"it. Did she just start on the Duragesic? Just wondering because I tried that at one time, and when i first started on it, I was very doped up. however after a month's time, I got up past her dose and barely felt it. I had to quit in though because of some rashes, but I liked not having to take pills all the time.

I agree with the other poster who thinks its a psychological disorder thats aggravating her condition. I can't imagine not having any family willing to even visit or be bothered with her. She must feel incredibly sad that no one cares (at least her family anyway, at least she has you!!).

Maybe she does need some better psych care and meds? I don't know how to get her to move. If she says it hurts though when she moves, I don't blame her for not wanting to!! Who wants to be in pain? I wonder if PT could try some heat packs before she moves her joints? I don't know what the answer is, but I feel for you and her. I'm worried about her skin and all those areas that are going to be vulnerable due to her immobility. But you can't force her. Sad all around, I agree.

Sorry I don't have any answers, but I would start with psych, even if she says she's not depressed. Just being in that much pain will cause chemical changes in the brain over time, and often times some antidepressants will be prescribed for adjunctive treatment, at least it's common in this area with the pain docs here.

Good luck to you.

Specializes in Lie detection.

i see they moved us:roll . thanks for all the responses. i guess i just wanted to make sure i had tried everything and it looks like i have. the last thing i'm going to do is have our county psych team evaluate her. she is treated by our psychiatrist but may benefit a bit more from a full team. they have an md, social worker and caseworker and visit pt's at home weekly that are homebound.

so that's it. a year ago, she chose to sit and not get up, that was her choice. sigh... i have to stop wanting to fix everything in life:saint: :D

beez:smilecoffeeilovecof

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