Polycystic Ovaries - page 2

I have a question, I have been dx with Polycystic Ovaries and other than giving me medicine for the symptoms the doc really hasn't done much. Does anyone know anything about this problem? Any help... Read More

  1. by   RNforLongTime
    Thanks micro for you support. I went to my OB/Gyn today and mentioned the glucophage to him. Well he admitted that he didn't know much about it so he referred me to an RE in Cleveland. I am calling in the am to see when I can get an appt! All I want is one healthy baby. I'll be thirty soon and would like a child before I turn 35.
  2. by   nrsjo
    I also have polycystic ovarian syndrome. Have had irregular to no menses on and off since my teens, weight gains, weird hair growth patterns, all ignored and passed off by docs. I am now on 8 mg/day of Avandia and feeling great. The excess hair growth has stopped and my weight has become managable.

    A big part of the problem with PCOS is that you become insulin resistant, which accounts for the weight gains. The purpose of the Avandia/Glucophage routine to curb that resistance, and therefore make it easier to bring your weight under control. It also somehow affects your hormones so that hair growth, and other symptomes recede. My OB/GYN had told me that if I chose to conceive she would take me off the pill, and leave me on the avandia, as they find in PCOS patients that getting their insulin levels under control often results in successful conception.

    Hope that helps.
    Last edit by nrsjo on Jun 10, '02
  3. by   nrsjo
    I also have polycystic ovarian syndrome. Have had irregular to no menses on and off since my teens, weight gains, weird hair growth patterns, all ignored and passed off by docs. I am now on 8 mg/day of Avandia and feeling great. The excess hair growth has stopped and my weight has become managable.
  4. by   micro
    kaknurse and nrsjo,
    wow, and keep on fighting.............
    I do not know what it is about doc's and I do not know if it is a female patient to the typically male doc thing.......
    but how often we are overlooked and just said "puffaw" tooo'

    sadness for me, but it at this point in my life gives me something to share and to give to my 'sisters'.........

    micro's daughter would have been cool', but hey, micro can touch a lot more than one, huh?????

    sorry for a bit of sadness......here.........

    micro has only learned to speak up in her thirties and in just a day micro turns forty one.............

    oh, well..........

    hey, all (my lady friends at least,..........read anything that Gail Sheehy writes.......she is so cool)

    love to you all.........

    micro
  5. by   dianthe1013
    I was diagnosed with PCOS by ultrasound when I was 17. I have never had a regular menstrual cycle, and my GP immediately suspected this malady.

    Unfortunately, this was back in the day when the general idea of treatment was a BCP script to regulate menses, and regular facial waxing.

    Recently, I've been thinking about the possibility of pregnancy, so I've started seeing a new doc who wants to treat this more aggressively. She's pondering the metformin route, and has also placed me on a low-carb diet.

    Hopefully, with proactive treatment of this disorder, we all need not suffer its effects so greatly.

    It's been interesting to me, personally, to see the number of women here who've posted their personal stories rather than just treatment experience... It's been eye-opening. After all, the research assertion is that 1 in 10 women has PCOS. After seeing these posts, I believe it.

    Donna
  6. by   micro
    we are out there and learn from our mistakes........

    mainly not learning to speak up and DEMAND what we want...............

    because even though there may and will always be sad answers for some of us.........
    the majority of us, will have and gain what we want want, .............

    IF WE FIGHT FOR IT"

    micro

    too late for me, but I love all my sisters'
  7. by   BadBird
    Well good luck with your treatments. I have 2 large cysts on my left ovary, about 11cm. I am having surgery to remove them next month. I did not have any symptoms, the Dr. found them on a routine exam.
  8. by   LauraRN0501
    This is so awesome! Not that it seems PCOS is not as uncommon that I thought, but that there are others out there who are dealing with what I am. I am currently on 25 mg of aldactone and a BCP. I have known I've had pcos for YEARS, I was actually put on bcp when I was 16 to regulate my periods, but stopped when I got older. I only have a period on my own about every year or so. I actually just started treatment about a month ago and had my first period last week. That was ugly, I don't remember my periods being so painful.

    But after reading the messages here, I am wondering if I should be on glucophage instead of the aldactone and bcp's? For the ladies who started having periods with glucophage/avandia, are you also on bcp or is it purely the other?

    PS Someone said they are going to try clomid. I was on it for three months and all that happened was I got cysts on my ovaries. So be careful and report any pain to your doc immediately! Good luck.
  9. by   Kay Shepard
    I am 54. I had such terrible periods in my teens & early twenties that I was anemic all the time. I was skinny - 5'7" and 115 lbs. I was very lucky to have 2 kids and then talked a doctor into a hysterectomy, but my ovaries were left (I was 26 and this was the 70's). After the hyst I gained weight (no more anemia), and the acne stayed terrible. The hair on my scalp was thin & getting worse, but I was hairy elsewhere. Then, as I got older, I developed insulin tolerance & "borderline" blood sugars, which were not treated except by diet. I became frankly diabetic only in 1997. In the meantime, however, my dermatologist was the only one who really listened and helped me. When I was 39, he attended a c.e. seminar where they suggested use of Spironolactone (an old B/P med), estrogen, and Rogaine to treat the syndrome (no one else bothered to determine if there was something real going on). My life became worth living with this combination. The hair on my chest fell out, and the hair on my head grew in again. My acne was much improved, as was my Rosacea. In 1997 I became quite suddenly fully diabetic after some surgery, and was finally put on Glucophage. I have finally been able to lose weight, although it is always still a struggle. I thank God for my dermatologist, because no one else listened & cared and believed. For those of you who still have acne problems, do talk to your doctor about spironolactone - its action is to block androgens at the skin level. Initial dosage is 50 mg. b.i.d. I have never been able to get off it completely, but it is a very safe drug. And the Rogaine is a miracle, but you have to stay on it or the hair falls out again - I know! I wish I'd been diagnosed at a much younger age, but they know a lot more these days, if you can get a good doctor who doesn't think you're a neurotic whiny hypochondriac! Hang in there, compadres. The world is slowly becoming kinder to our half of the human race.
  10. by   KaraLea
    I have tried Aldactone/Spironolactone, but ended up with dizziness and no real difference in my PCOS symptoms. Right now it is just BCP, Diovan/HCTZ (for blood pressure), Paxil (for depression), and Xenocal (for weight loss). I think the reason I had such dizziness with the Aldactone was because they kept me on the Dirvan/HCTZ at the same time and I ended up with low blood pressure. I think I will bring up the Glucophage with my doc next time I go in. I have to go back in soon in order to get more refills on my other meds anyway.
  11. by   grneturtle
    I didnt know there were so many of us out there!!!!!!
    Does anyone also been diagnosed with a high testosterone level and they only thing the internest told me to do, was go to Weight Watchers, i am now 41 years old, have had one surgery to remove a large cyst and have not had a period in 15 months, except for a small breakthrough spotting.
    I really dont want to go on the pill because it makes me sick except the triphasal but my insurance wont pay for it and I am tired of no periods or the last one that lasted 3 weeks and was a 3 pad gusher could cough or laugh without gushing yuk!
    Why cant all doctors practice the same medicine instead of playing games, I am very overweight have always had alot of facial hair and now its growing other places and pain in my hips which I had before when Ive had a cyst, what should I do and what is this about glucophage, how does this act on this dx?????
  12. by   moni rn
    karalea,

    sorry for the lateness of my reply! :imbar my mother was taken to the emergency room friday with chest pain, and she is still in there. they have ruled out her heart, but they have no clue what is causing the pain. so, it is just a waiting game! ugh!

    back to the subject ... a little about my background: all of my hormones are in line & i am not insulin resistant. i did have some weight gain (about 30 lbs), some abnormal hair growth (i can't believe i just admitted that!), adult acne & irregular cycles (i did ovulate, but not until day 19 or 21 or even later.). my re ordered an ultrasound. since all of my bloodwork was normal, he was not expecting pcos, but there it was clear as day. i started crying on the table. the u/s tech asked why i was crying. i said that i knew what i was looking at. she asked, "are you sure?" all i could do was to shake my head yes.

    when i went back for my follow-up appt, we discussed glucophage. i asked the same question you did. "won't it lower my blood sugar too low?" he said it shouldn't. i have been on it since jan, & i have not had a single problem with my blood sugar. i do carry around glucose tablets around, just in case though. i have also changed my eating habits a little. i have cut out most of my carbs. most of my carbs come from fruits & vegetables. since taking the glucophage, i have lost about 20 lbs, acne has mostly cleared up & my cycles are now 28 days.

    sorry for the novel! i hope this helps you out some!

    best wishes!
  13. by   emrettig
    This is a fascinating subject. At 54 I am significantly overweight. I had a hysterectomy last year but prior to that my periods were as regular as clockwork. I do have HTN and have had it for years. I know I have problems with insulin resistance. In my 20's I took DBI (fenformin) and lost a lot of weight. I have been reluctant to take the Glucophage, even though my husband (who is a Peds Endo) brought samples home for me. I have two sisters who have documented PCOD, one even managed to have 3 babies without the help of a fertility specialist.
    After checking the cystosister site I am going to start on the Glucophage and see what happens.

    Thank you for asking the question. It got me thinking about taking care of myself.

    Eileen

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