The large majority of the families I deal with are amazing... but there are a few that make my life a little bit difficult. Anyone else dealing with a family that "knows better" than all the doctors, nurses, speech paths, etc?
Wow did you hit the nail on the head! I work in a residential setting where the majority of the residents have been living there for many years. They are getting older and they are beginning to need more medical intervention. Many of them have guardians who are responsible for making medical decisions. We (nurses) are trying our best to advocate for our residents but it becomes even more difficult when you have family members/guardians who disagree or think they "know better". It seems that the interventions that are permanent such as tooth extractions, peg tubes, dietary changes, braces (for limbs), wheelchairs etc.. are the things that are the most unaccepted by the families.
here is an example.. resident has taken medications for many years that have caused teeth to become brittle and are decaying.. she is in pain.. father does not want teeth pulled because resident will not be able to eat the food she enjoys (dentures are expensive!) ... *****? the resident cannot eat the food she enjoys anyway because she is in PAIN!! Dietary modifications can be made in the form of an alternative texture so the resident can eat the food she enjoys. Dad does not want this to happen. So basically we have to wait for a tooth to become infected or is causing severe pain before he will agree to an extraction. It would be so much easier and more humane to have all the teeth extracted. ........yikes i think I just went on a little rant here.
Anyway.. I feel your pain