Accutane

[sanakruz]

Help.

I'm posting this here because I'm hoping some of you may at least have anecdotal stories.

To make a long story short- my daughter is newly diagnosed with a seizure disorder. She had 2 clonic-tonic seizures in one day while taking accutane.This led her to her current status of medication (topamax) Prior to meds she did have a couple seizures (like I said it's a long story...) which for many reasons were not treated with meds.

I downloaded the entire monograph from the manufacturer on Accutane- It does say it lowers the seizure threshold.

The pediatrician didnt want her to continue on the accutane but left it up to the derm.

The neurologist discounted the accutane as a factor in increased seizure activity.

The derm was wishy washy

The 2nd derm was noncommital

She is not currently on accutane.

She wants to go back on it. I'm very reluctant.

Any feedback would be appreciated.

[steelcityrn, RN]

Why not try the Retin A ? Its a safer medication than accutane.

[junebug62]

I have very mixed experiences with this. Both my daughters were on this med. The younger one did great with it. The older one, did horrible with it. Major depression with (she later told me) thoughts of sucide. Of course we stopped it, reported it etc. It was horrible. Upon speaking to others they said they had the same feelings but they just suffered though and did not say anything. How horrible for them.